68%
£340raised of £500 target by 13 supporters

Weʼre raising £500 to raise awareness and funds for the GEM appeal. Ben and I are fundraising to help children with rare and incurable genetic disorders

Location
Worsley, United Kingdom
Time left
13 days to go

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Crowdfunding is the new way to raise money for a personal cause on JustGiving.

Story

We are doing a fun fundraising event to raise money for an incredible cause - the GEM appeal.

GEM was founded only in 1994, but has astonishingly since raised £2.7m thanks to the efforts of the incredible lady Karen Johnson who sadly lost both her sons at the age of 12 years to a rare genetic and incurable disorder. Karen recently won a Pride of Britain Award for her outstanding journey because as a result of Karen's fundraising, children now have more readily available trials and treatments to slow down progression of the illness. However, as it stands - there is still NO CURE. So we MUST continue to fundraise and raise awareness for children fighting such rare illnesses.

Close friends of ours Jen and Andy's daughter was born with a rare genetic disorder. Millie was diagnosed with PKU at only a few weeks old. Millie has blood taken once a week to check her levels are stable and attends the Willink Unit every three months for a developmental check which includes measuring and weighing plus dietary advice and support regarding introducing new foods to Millie's diet.

Thanks to Karen's efforts, Millie was diagnosed from birth and lives a normal life, albeit she has to keep her condition in check! Millie is an outstanding little girl and an absolute pleasure to know, it is so sad that she will always have to monitor her condition as currently there is no cure. Ben and I would like to fundraise for Millie and all children facing these life limiting illnesses.

Please donate to our page and leave your email address for us and in return you will receive a raffle ticket to win one of three amazing prizes; a £200 hamper worth of beauty products, a signed football shirt or a bottle of MOET champagne and luxury chocolate selection!
The prize drawer will be drawn Friday 23rd December, just in time for an extra Christmas gift! All profits go to the GEM appeal.

Feel free to donate as you wish, but please leave your name and email to enter the prize draw.

Thank you x

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Updates

2

  • Natalie Tebay

    Natalie Tebay

    a month ago

    Natalie Tebay

    http://www.gemappeal.org.uk/

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  • Natalie Tebay

    Natalie Tebay

    a month ago

    Natalie Tebay

    Thank you so much for donations so far. Remember, every little helps towards finding cures for children born with genetic defects! Currently there are no cures, but with current fundraising efforts children are being given the chance to LIVE! However, some children struggle with quality of life and can die very young which causes so much pain and heartache, so please please help us to prolong lives, give children a chance to live a more comfortable life and even contribute to finding a cure! Any small donation is much appreciated, thank you x

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a month ago

Natalie Tebay started crowdfunding

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Supporters

13

  • Daryl Chatterton

    Daryl Chatterton

    Dec 1, 2016

    Hope you guess make it :) #youguysgotthis

    £20.00

  • Nicky Deverdics

    Nicky Deverdics

    Dec 1, 2016

    £20.00

  • HELEN PRICE

    HELEN PRICE

    Nov 30, 2016

    ❤️❤️❤️

    £10.00

Natalie Tebay

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About the fundraiser
Natalie Tebay

Natalie Tebay

Worsley, United Kingdom

For Simon, Mike and of course for Millie xxx

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