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£1,357raised of £5,000 target by 34 supporters

Weʼre raising £5,000 to Give Ben the best Quality of life #BenvsDuchenne

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

WHAT ARE WE DOING?

On 22nd September, an intrepid group of Dads (Alex Clarke, Angus Burnett, Paul Kelly, Jack Taylor, Stuart Connelly, Nicholas Coleman and Daniel I'Anson) will be walking 50km in a day from Little Wittenham (near Dorchester) to Henley on Thames. Taking us past Shillingford , Wallingford, Moulsford , Goring , Pangbourne , Purley on Thames , Reading , Sonning , Shiplake and Henley. All with varying levels of fitness and preparedness.

WHY ARE WE DOING IT?

On 31st August 2017, the lives of the Clarke Family changed forever.

At age 4, their eldest son Ben (who we have known from before he was born), an amazingly brave, funny, caring and loving little boy, was diagnosed with Duchenne Muscular Dystrophy (DMD). DMD is one of the most common fatal genetic disorders to affect children (mostly boys) around the world. It is a devastating, progressive and as yet incurable muscle-wasting disease, gradually robbing Ben of his ability to move and breath independently, also impacting his heart function.. The current life expectancy for children with Duchenne is their early 20s.

As with all parents, Alex and Lisa want to provide Ben with the best possible quality of life and amazing experiences. In order to ensure Ben's on-going well-being, amongst other things, they will need to carry out major mobility adaptations to their house and an electric wheelchair will be a necessity sooner rather than later.

By doing this we want to raise awareness of this cruel condition and our wish is for Ben, and everyone living with Duchenne get the support to have the longest and most fulfilling lives possible.

All proceeds donated into this fund will be used for the future well-being, and development needs of Ben.

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Alex Clarke

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    8 days ago

    Alex Clarke started crowdfunding

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    Page last updated on: 8/20/2018 11:30 AM

    Supporters

    34

    • Christian Harris

      Christian Harris

      Aug 20, 2018

      For a good cause.

      £30.00

    • Adrian Philcox

      Adrian Philcox

      Aug 20, 2018

      £20.00

    • Julia Dance

      Julia Dance

      Aug 19, 2018

      All the best xxx

      £30.00

    • Anonymous

      Anonymous

      Aug 18, 2018

      £10.00

    • Sam Dance-Thomson

      Sam Dance-Thomson

      Aug 17, 2018

      Go Alex!

    • Alex Cochrane

      Alex Cochrane

      Aug 17, 2018

      £50.00

    • Christopher and Judie Burnett

      Christopher and Judie Burnett

      Aug 15, 2018

      AngusSecond tranche

      £50.00

    Alex Clarke

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    Alex Clarke

    Alex Clarke

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