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Alex Clarke raised £9,117 from 215 supporters

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Closed 10/12/2018

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£9,117raised of £5,000 target by 215 supporters

    Weʼve raised £9,117 to Give Ben the best Quality of life #BenvsDuchenne

    Funded on Monday, 10th December 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    WHAT ARE WE DOING?

    On 22nd September, an intrepid group of Dads (Alex Clarke, Angus Burnett, Paul Kelly, Jack Taylor, Stuart Connelly, Nicholas Coleman and Daniel I'Anson) will be walking 50km in a day from Little Wittenham (near Dorchester) to Henley on Thames. Taking us past Shillingford , Wallingford, Moulsford , Goring , Pangbourne , Purley on Thames , Reading , Sonning , Shiplake and Henley. All with varying levels of fitness and preparedness.

    WHY ARE WE DOING IT?

    On 31st August 2017, the lives of the Clarke Family changed forever.

    At age 4, their eldest son Ben (who we have known from before he was born), an amazingly brave, funny, caring and loving little boy, was diagnosed with Duchenne Muscular Dystrophy (DMD). DMD is one of the most common fatal genetic disorders to affect children (mostly boys) around the world. It is a devastating, progressive and as yet incurable muscle-wasting disease, gradually robbing Ben of his ability to move and breath independently, also impacting his heart function.. The current life expectancy for children with Duchenne is their early 20s.

    As with all parents, Alex and Lisa want to provide Ben with the best possible quality of life and amazing experiences. In order to ensure Ben's on-going well-being, amongst other things, they will need to carry out major mobility adaptations to their house and an electric wheelchair will be a necessity sooner rather than later.

    By doing this we want to raise awareness of this cruel condition and our wish is for Ben, and everyone living with Duchenne get the support to have the longest and most fulfilling lives possible.

    All proceeds donated into this fund will be used for the future well-being, and development needs of Ben.

    Updates

    1

    • Alex Clarke1 day ago
      Alex Clarke

      Alex Clarke

      1 day ago

      From all of us we just wanted to let every single one of you know that we are totally overwhelmed by your unquestioned generosity to support Ben and us as a family. Your donations will go a long way to helping us provide Ben with all he needs and a wonderful quality of life! Thank you from the bottom of our hearts!!!

      Update from the Page owner

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    4 months ago

    Alex Clarke started crowdfunding

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    Page last updated on: 12/9/2018 7:29 PM

    Supporters

    215

    • Jessica Edwards

      Jessica Edwards

      Nov 30, 2018

      £10.00

    • James Russell

      James Russell

      Nov 29, 2018

      Brilliant achievement. Sounds like you didn’t have to suffer Nick’s company on the way round which would have been a bonus!

      £100.00

    • Ada Elliott

      Ada Elliott

      Nov 17, 2018

      Lots of love from all of us xx

      £50.00

    • Mark Lockyer

      Mark Lockyer

      Nov 7, 2018

      Well done for raising so much guys! Lockers! - Friend of Angus Burnett

      £50.00

    • Michael  & Michelle Digman

      Michael & Michelle Digman

      Oct 22, 2018

      Well Done Stuart and the other dads!

    • Angus Burnett

      Angus Burnett

      Oct 12, 2018

      From Philip Watts and John and Janine Glen ...

      £150.00

    • Anna Byers

      Anna Byers

      Oct 1, 2018

      Well done to all the Dads! - Jack Taylor - 100kms next time!!

      £20.00

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    Alex Clarke

    Alex Clarke

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