Weʼve raised £45 to Fund our families living with Cystic Fibrosis in everyday life and crisis situations.
- Worthing, UK
- Funded on Saturday, 8th December 2018
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We are parents who's children are under the care of Worthing & Chichester Hospitals & set up a charity to help our children & our families who live with Cystic Fibrosis.
Cystic Fibrosis is a life limiting condition which clogs the lungs & other major organs with thick sticky mucous causing recurrent chest infections that irriversably damage the lungs. Also unable to digest fat properly and so take medication with everything that contains any fat. Over half of CFers do not make it to 41yrs old. CF means 2+ hours a day on nebulizers, medications & chest physiotherapy and lots of time in hospital for admissions and clinics.
We support families with a strong community of people that are able to freely chat to each other. Via social media or regular meet ups. Newly diagnosed parents have a point of contact with any of us. We are all CF parents.
We support our families financially with admissions which are a minimum of 2 weeks and usually in London so food and travel & losses in earnings are huge.
We would like to be able to send any new parents who are going to London for a sweat test or the education days in a taxi or at the very least cover their travel costs.
We work with local businesses & charities in the area to ensure our families needs and dreams are met.
As a group of parents all with children with CF we feel we're well placed to help other families in the same positions as us.
Immy was diagnosed age 4 after Zachary was diagnosed at birth. Every year since diagnosis Immy has been an avid cake sale holder and loves nothing more. She does it mostly by herself with her friends, Neil & I mearely set the date, advertise and very little in the way of setting up. She's a determined lady!
Please help our incredible little people help our local families living with #cysticfibrosis This year is extra special because this year it's in aid of our very own charity that we set up this year Children's Cystic Fibrosis Fund Worthing & Chichester.
Updates appear here
NEIL JONES started crowdfunding
Leave a message of support
Sep 13, 2018
Sep 13, 2018
Sorry we couldn't be there but well done for all that hard work on the cake sale!
Hannah Le Fevre
Sep 10, 2018
Thanks for the cakes! Well done Immy x
Sep 8, 2018
Well done Immie you are a superstar! Sorry we couldn’t get to your stall to buy some cakes. X
Sep 7, 2018
Good luck with your fabulous cake sale! Have a woderful time! Sorry i cant attend but im having another lumbar spine proceedure, but shall send you happy thoughts, prayers and love! You are amazing!!!
Sep 7, 2018
Sorry, we won't be able to make it but here's a little donation.Good luck Immy and friends xx
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