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£2,841raised of £100,000 target by 114 supporters

Weʼre raising £100,000 to NF1 Army

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

As many of our friends and family know our beautiful daughter Jessica has a condition called NF1 (or it’s full fancy term Neurofibromatosis Type 1).

At 6 years old Jessica has already gone through over 10 MRI scans, the same number of General Anaesthetics, several surgical procedures including one for a gastrostomy tube which enables us to feed her. Her joints are hyper mobile, she has low muscle tone and daily nerve pain throughout her body. Her ability to concentrate for long periods of time is significantly lower than others and she easily becomes over stimulated by new or challenging situations. She also has the most beautiful and caring nature, wonderful smile and determination to keep going despite her challenges.

Jessica is soon going to embark upon a new trial drug through Great Ormond Street and Manchester Children’s Hospital to hopefully shrink a tumour which is growing very close to her airways. This will of course present its worries and challenges but we are also very lucky that research has given her this opportunity. As parents we want to fix anything that is broken for our children, and this is something that is out of our hands. Jessica works harder than most and uses more energy than most to simply get through the day.

I have a mission that if I too can use the extra energy and determination Jessica uses then we can contribute to changing the future of NF1. Just a few years ago this potentially life changing drug wasn’t available to our little girl so with more funding who knows what might be around the corner.

My initial target is £100,000 🙈 This will all be donated to fund further research into treatment for NF1 at Manchester Childrens Hospital.

I’ll be honest, the most I’ve ever raised is £300 for the RSPCA so this seems like an impossible task so any help and support would be greatly appreciated😊 Any small amount would be most gratefully received and if you can share this with your family and friends I will hopefully reach enough people to get to my over ambitious target before I’m 50 🤣

NF1 affects 1 in every 3,000 people. It’s more prevalent than Cystic Fibrosis and yet is so often still unheard of so let’s spread the word and raise some money xxxx

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Updates

6

  • Krista Bradley7 days ago
    Krista Bradley

    Krista Bradley

    7 days ago

    Update from the Page owner

    Share this update to help us raise more

  • Krista Bradley1 month ago
    Krista Bradley

    Krista Bradley

    1 month ago
    Update from the Page owner

    This is amazing! Thank you so so much everyone xxx

    Share this update to help us raise more

  • Krista Bradley1 month ago
    Krista Bradley

    Krista Bradley

    1 month ago

    Follow us on Facebook - ‘NF1 Army’

    Share this update to help us raise more

1 month ago

Krista Bradley started crowdfunding

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Page last updated on: 8/15/2018 9:19 AM

Supporters

114

  • Ste Carter

    Ste Carter

    Aug 15, 2018

    Good luck in achieving your goal

    £10.00

  • Anthony Quinn

    Anthony Quinn

    Aug 15, 2018

    I wish you all the very best in achieving your goals Gary!

    £10.00

  • David Riggs

    David Riggs

    Aug 13, 2018

    £10.00

  • Heidi Thomas - Independent Scentsy Consultant

    Heidi Thomas - Independent Scentsy Consultant

    Aug 12, 2018

    Thank you for hosting our fundraising Scentsy Party - In total we raised £71.50 commission for your cause! Good luck in the future..you will get there!

    £71.50

  • Andrea Atherton

    Andrea Atherton

    Aug 4, 2018

    Best wishes Lucy Atherton and family X

    £10.00

  • Elaine Thomson

    Elaine Thomson

    Aug 1, 2018

    All the best xx

    £10.00

  • Barbara Bradley

    Barbara Bradley

    Aug 1, 2018

    £5.00

Krista Bradley

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Krista Bradley

Krista Bradley

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