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Krista Bradley

Krista Bradley is crowdfunding

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£11,169raised of £100,000 target by 175 supporters

Weʼre raising £100,000 to NF1 Army

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

As many of our friends and family know our little Jessica has a condition called NF1 (or it’s full fancy term Neurofibromatosis Type 1).

At 7 years old Jessica has already gone through over 10 MRI scans, the same number of General Anaesthetics, several surgical procedures including one for a gastrostomy tube which enables us to feed her. Her joints are hyper mobile, she has low muscle tone and daily nerve pain throughout her body. Her ability to concentrate for long periods of time is significantly lower than others and she easily becomes over stimulated by new or challenging situations. She also has the most beautiful and caring nature, wonderful smile and determination to keep going despite her challenges.

Jessica is currently on a new trial drug through Manchester Children’s Hospital to hopefully shrink a plexiform tumour which is growing in her neck. This has presented its challenges, Jessica spent 2 months housebound earlier this year due to side effects of the drug. However, results are starting to look promising and we are also very lucky that research has given her this opportunity.

As parents we want to fix anything that is broken for our children, and this is something that is out of our hands. Jessica works harder than most and uses more energy than most to simply get through the day.

We have a mission that if we too can use the extra energy and determination Jessica uses then we can contribute to changing the future of NF1. Just a few years ago this potentially life changing drug wasn’t available to our little girl so with more funding who knows what might be around the corner.

Our initial target is £100,000 🙈 This will all be donated to fund further research into treatment and management for NF1 at Manchester Childrens Hospital.

I’ll be honest, the most I’ve ever raised is £300 for the RSPCA so this seems like an impossible task so any help and support would be greatly appreciated😊 only a few weeks ago we manage to add to our crowd funding page a massive £2500, Any small amount would be most gratefully received and if you can share this with your family and friends We will hopefully reach enough people to get to this over ambitious target

NF1 affects 1 in every 3,000 people. It’s more prevalent than Cystic Fibrosis and yet is so often still unheard of so let’s spread the word and raise some money. Please if you can’t come along to our events, please follow us through Facebook and on Instagram. A donation through crowd funding would also help immensely. Take care all 💕

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Updates

10

  • Krista Bradley7 months ago
    Krista Bradley

    Krista Bradley

    7 months ago

    Just a little update. Jessica is doing great despite a few set backs from the side effects of the trial. Jessica had 3 months on the trial drug and in that short time her scans showed some positive results. She’s had a couple of months mostly indoors at home and off treatment due to an infection but we’re hoping to get started again soon. Jessica and her brother and sister Harrison and Amaya are really enjoying all the fundraising we’re doing. Thank you all so much for your support and encouragement, it means more than words can explain.

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  • Krista Bradley1 year ago
    Krista Bradley

    Krista Bradley

    1 year ago

    Follow our fundraising events on our Facebook Group - ‘NF1 Army’

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  • Krista Bradley1 year ago
    Krista Bradley

    Krista Bradley

    1 year ago
    Update from the Page owner

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1 year ago

Krista Bradley started crowdfunding

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Page last updated on: 9/12/2019 10.10

Supporters

175

  • Anonymous

    Anonymous

    Sep 12, 2019

    Great cause.

    £10.00

  • Anonymous

    Anonymous

    Sep 12, 2019

  • Krista Bradley

    Krista Bradley

    Sep 11, 2019

    Thanks so much for everyone who supported our Family Fun Day on 8th September. We all had such a fantastic day and raised a huge amount for NF1 Army. Follow us on Facebook 'NF1 Army'

    £2,644.09

  • Anonymous

    Anonymous

    Sep 11, 2019

    £10.00

  • Anonymous

    Anonymous

    Sep 11, 2019

    Keep smiling Beautiful Girl :) hope you get better soon.

  • Anonymous

    Anonymous

    Sep 11, 2019

    £20.00

  • Steve Crawford (RM)

    Steve Crawford (RM)

    Sep 9, 2019

    Keep up the good fight Gary & family. An inspiration to all

    £30.00

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Krista Bradley

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