9%
£960raised of £10,000 target by 24 supporters

Weʼre raising £10,000 to Help fund my daughter's heart treatment as the NHS have failed her

Location
Bolton, United Kingdom

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Story

My daughter Alicia is 12 and for 12 years she has been having problems with her heart. She has a condition called congenital junctional supraventricular tachycardia.

This condition is so rare we have only found one other family with this, in Texas. Her cardiologist had worked all his life but never met a child or adult with this condition. He had only ever read about this and he trained and studied in the States.

We were told when she get to puberty it would either get better or worse and unfortunately it has got much worse.

Her medication has been increased but she spends most of her time in a tachycardic state leaving her extremely tired and poorly.

The NHS have failed her with a failed procedure and now they are wanting to a temp the same operation again. No one knows the plan and no one knows what to do or which way to turn.

Since October last year she has become unstable and to make things worse her cardiologist who she has had since she was 3 has now retired.

she has been seen by another who has just graduated but doesn't fully understand her condition.

The only way would be to take her to London for more help and to see a consultant that may be able to help. but this would be private as he only works within the private sector.

I have been off work for the last few months with pneumonia and have also been hospitalised and not been able to work and as soon as I was ok to go back to work Alicia became more unwell.

We would normally be in a position to pay for the help she needs but as I have been unwell and unable to earn.

Any money not spent on Alicias direct care will be donated on.

Thank you for reading and if you can help, thank you if not just thank you xxx

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Updates

14

  • Nichola Mclaren3 months ago
    Nichola Mclaren

    Nichola Mclaren

    3 months ago

    Alicia is back in hospital as her heart rate is once again all over the place she cannot go to the toilet with out her heart rate going over 150 bpm Just sitting in bed and her heat is ove 120. Bolton hospital are being great but just waiting on Great Ormond street children’s hospital to work out a plan. If not we may have to go private again. Just shows how messed up our country is when they cannot give a 13 year old girl the help she needs xx

    Update from the Page owner

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  • Nichola Mclaren4 months ago
    Nichola Mclaren

    Nichola Mclaren

    4 months ago

    So sorry that I have not updated for some time it has been a difficult few months. Alicia not long after the medication change she came down with glandula fever. She tried to go back to school but has found things difficult. Alicia has had most of the winter term away from school and now we are looking to go back to London to get more help. We need as much support as we can get at the moment and thank you for all your continued messages and help xxxx

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  • Nichola Mclaren5 months ago
    Nichola Mclaren

    Nichola Mclaren

    5 months ago

    Alicia has had a tough few weeks. Viral infections as her immune system has taken a beating. She has not managed to go back to school yet as this is some distance for her to go. Not sure from one day to another which way we are going at the moment but still need help from any one who is willing. Thank you to everyone who has donated words are not enough to say how gratefull we are as a family. xxxxx

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7 months ago

Nichola Mclaren started crowdfunding

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Supporters

24

  • Louisa Winder

    Louisa Winder

    Nov 30, 2017

    Thinking of you and your family and I hope she gets the treatment she needs as soon as possible. She is absolutely beautiful. As a mother myself I can not imagine how heartbreaking it must be xx

  • P Spitere

    P Spitere

    Nov 16, 2017

    Sorry I can't give any more Nichola. I will pray that your wonderful daughter gets the medical attention she needs. All the best Paulx

    £20.00

  • Christina Slater

    Christina Slater

    Sep 7, 2017

    Thinking of you all. Feel better soon Alicia! With love & best wishes. Tina, Michael, Ben & Issy xxx

    £20.00

  • George Matanovic

    George Matanovic

    Aug 28, 2017

    Hope Alicia gets better soon!

    £30.00

  • Ian Whitehead

    Ian Whitehead

    Aug 10, 2017

    Hope everything goes well

    £20.00

  • Carl bass

    Carl bass

    Aug 9, 2017

    Hope you hit your target for your daughter.

    £10.00

  • Barbara Bradley

    Barbara Bradley

    Jul 21, 2017

    Good luck to you all xx

    £30.00

About the fundraiser
Nichola Mclaren

Nichola Mclaren

Bolton, United Kingdom

We are a family of 4 from Bolton. We are a very loving family with the children at the heart of everything we do. There is myself Nichola, my husband Will. My daughter Alicia and her brother Harrison. Oh and Snowy the dog. X

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