I was diagnosed with Primary Progressive MS (Multiple Sclerosis) in 2009. It wasn’t too bad to start with but, as MS is a degenerative disease, it has predictably got worse. Much worse.

For the last few years, I have managed to walk (just) with crutches. Now, I need to be in a wheelchair. To move about, I have to use my Rollator (it’s not designed for that) or literally crawl. The NHS has given me a wheelchair, but it’s so heavy, at 19.3Kg, that I can hardly lift it. And it’s too heavy for friends to lift into their car on the rare occasion I go out.

I need a much lighter one quickly The NHS can’t help me, and certainly not fast enough. This is not just me moaning, but it's a national problem, as covered in the Guardian here.

My situation is made more complicated by the need for 2 wheelchairs, one for inside and one for outside. Why? Because the house I rent was built in the 19th century, and cannot be adapted for wheelchair ramps. There’s a high threshold at the front door that my wheelchair has to be lifted over, so it needs to be as light as possible.

I have been able to source an exceptionally lightweight wheelchair that is durable and comfortable enough for everyday use. The wheelchairs I have found so far cost £449 each excluding VAT, and weigh just 10.4Kg each, although I will continue to search for better deals. I have to pay JustGiving their 5%. Fortunately due to my disability, VAT will not be applicable on the wheelchairs, which will save me 20%.

I can’t afford to buy them myself, as my condition leaves me unable to work, In fact I have reached the point where my GP says I can’t drive anymore. In the event that I exceed my target for this crowd funding campaign, I will be able to buy other more major disability aids and treatments, which will significantly improve my quality of life

The strange thing is that I seem to help a lot of people online, as my Facebook food page, My Easy Suppers , now has nearly 22,000 fans. But it doesn’t make me any money! Many people have called me inspirational, and disabled people say I really help them by showing what I can do against very big odds. Even the MS Society published an article about me on their website blog. Why is this all strange? Because my 24/7 MS doesn’t make me feel in the slightest bit inspirational! Here's a video I made 6 months ago, before I had a wheelchair .