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£310raised of £5,000 target by 11 supporters

Weʼre raising £5,000 to Give children and families their families funds to have their annual meeting whereby they meet doctors to learn more about the condition.

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

My nephew Callum suffers from a very rare condition called Nicolaides Baraitser syndrome that currently affects a few hundred children the world over. The spectrum of the condition can vary wildly from the mildest being moderate learning difficulties and physical features through to severe being strong physical disabilities and extreme personality traits.

Each year, families from the UK and overseas if they can afford it, meet with doctors and specialists to hold a small conference where they learn new information about the condition and share their knowledge.

This is also a chance for the children to meet others with the condition and to realise they are not the only ones. For the parents and families it's an invaluable opportunity to spend time together and share their individual experiences. Parents can feel comfortable with one and another whilst brothers and sisters can meet others who know how hard it can be to help their siblings.

For these families the financial demands to attend this annual meeting are quite often too much and not every family can attend. The meeting means a huge deal to them and very often is the only time in the year where they meet one another.

I wish to raise the funds so that as many families as possible can attend the meeting in Manchester next year. The money will pay for the venue hire, accommodation costs and hopefully toward an outing for them too. If we raise more then we can also look to bring extra doctors too which would be a massive plus.

I will also be running the Manchester half marathon this October to support this page and raise awareness. I am having to set the page up as a personal cause as the condition currently does not have its own charity and is supported only through jeans for genes presently.

https://en.m.wikipedia.org/wiki/Nicolaides–Baraitser_syndrome

https://m.facebook.com/groups/112351342117049?ref=group_header

http://www.ncbrs.com

http://www.ncbrs.com/our-stories/callum

Thank you

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Updates

2

  • Glynn Hatton11 days ago
    Glynn Hatton

    Glynn Hatton

    11 days ago

    Thanks to all that have donated so far. Please keep sharing the page to get as much attention as possible. The page and run is as much as about fundraising as it to raise awareness of Nicolaides Baraitser syndrome. 45 mind run to do today and training really ramps up next week...

    Share this update to help us raise more

  • Glynn Hatton13 days ago
    Glynn Hatton

    Glynn Hatton

    13 days ago
    Update from the Page owner

    Share this update to help us raise more

13 days ago

Glynn Hatton started crowdfunding

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Page last updated on: 8/19/2018 8:44 AM

Supporters

11

  • charlotte bull

    charlotte bull

    Aug 19, 2018

    Amazing thing to do x

    £10.00

  • G Dawson

    G Dawson

    Aug 11, 2018

    £100.00

  • Timothy Wilson

    Timothy Wilson

    Aug 11, 2018

    £30.00

  • William White

    William White

    Aug 11, 2018

    Friend of Hannah Kirkpatrick and her terrific Gran, Elaine Armitt. Good luck!

    £10.00

  • Natalie Bewley

    Natalie Bewley

    Aug 11, 2018

    Amazing thing to do for such a worthwhile cause. Good luck. Love Steve, Nat, Callen and Chip x

    £30.00

  • Angela Hay

    Angela Hay

    Aug 10, 2018

    Hope you reach your target. Friend of @Hannah Fitzpatrick x

    £10.00

  • Kirsty Challis

    Kirsty Challis

    Aug 8, 2018

    Good luck 😉 Kc & T

    £20.00

Glynn Hatton

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About the fundraiser
Glynn Hatton

Glynn Hatton

Heywood, UK

I'm 36 years old and originally from down south but now reside as a plastic northerner in Greater Manchester with my wife Victoria , our baby daughter Ariadne and dog Luther. My family are my world so helping my sister and nephew is massive to me. Thanks for any donations.

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