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Glynn Hatton raised £1,695.25 from 69 supporters

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Closed 06/12/2018

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£1,695raised of £5,000 target by 69 supporters

    Weʼve raised £1,695 to Give children and families their families funds to have their annual meeting whereby they meet doctors to learn more about the condition.

    Heywood, UK
    Funded on Thursday, 6th December 2018

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    Story

    My nephew Callum suffers from a very rare condition called Nicolaides Baraitser syndrome that currently affects a few hundred children the world over. The spectrum of the condition can vary wildly from the mildest being moderate learning difficulties and physical features through to severe being strong physical disabilities and extreme personality traits.

    Each year, families from the UK and overseas if they can afford it, meet with doctors and specialists to hold a small conference where they learn new information about the condition and share their knowledge.

    This is also a chance for the children to meet others with the condition and to realise they are not the only ones. For the parents and families it's an invaluable opportunity to spend time together and share their individual experiences. Parents can feel comfortable with one and another whilst brothers and sisters can meet others who know how hard it can be to help their siblings.

    For these families the financial demands to attend this annual meeting are quite often too much and not every family can attend. The meeting means a huge deal to them and very often is the only time in the year where they meet one another.

    I wish to raise the funds so that as many families as possible can attend the meeting in Manchester next year. The money will pay for the venue hire, accommodation costs and hopefully toward an outing for them too. If we raise more then we can also look to bring extra doctors too which would be a massive plus.

    I will also be running the Manchester half marathon this October to support this page and raise awareness. I am having to set the page up as a personal cause as the condition currently does not have its own charity and is supported only through jeans for genes presently.

    https://en.m.wikipedia.org/wiki/Nicolaides–Baraitser_syndrome

    https://m.facebook.com/groups/112351342117049?ref=group_header

    http://www.ncbrs.com

    http://www.ncbrs.com/our-stories/callum

    Thank you

    Updates

    6

    • Glynn Hatton3 months ago
      Glynn Hatton

      Glynn Hatton

      3 months ago

      I would like to thank each and every one of you for your kind messages, support and genirosity for this incredible group of kids and their families. Today's run was hard and killing my legs on the last couple of miles but it's nothing compared with the daily struggle these families deal with. The meeting means so much to them and knowing some of them that have not been can now attend next year and also some money toward those that have been before is amazing. I owe you all and will be forever grateful. All my thanks Glynn

      Update from the Page owner

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    • Glynn Hatton3 months ago
      Glynn Hatton

      Glynn Hatton

      3 months ago

      48 hours left till I'm at the start line and the past 6 days has been amazing. We've raised more in that time frame than the past 7 weeks. Thank you so much from the bottom of my heart for all the support. There is good on the world and you've all proved that. Just 13.1 miles to go....

      Share this update to help us raise more

    • Glynn Hatton5 months ago
      Glynn Hatton

      Glynn Hatton

      5 months ago

      7 miles and a bit of pain today. Keep sharing the love people x

      Update from the Page owner

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    6 months ago

    Glynn Hatton started crowdfunding

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    Page last updated on: 11/12/2018 20.58

    Supporters

    69

    • Janis Munro

      Janis Munro

      Nov 12, 2018

      Good luck with your fund-raiser! My grandson, who is 4, has NCBRS.

      £10.00

    • Anonymous

      Anonymous

      Nov 1, 2018

      From all the staff & customers @ Co-op Westfield Road

      £65.25

    • natalie holiday

      natalie holiday

      Oct 14, 2018

      Well done Glynn 👍👍👍

      £10.00

    • Tracy Abrams

      Tracy Abrams

      Oct 14, 2018

      Well done Glynn! Tracy & Rudi xx

      £10.00

    • Brenda O’Rourke

      Brenda O’Rourke

      Oct 14, 2018

      £20.00

    • Irene Dilkes

      Irene Dilkes

      Oct 14, 2018

      £20.00

    • Moya O'Rourke

      Moya O'Rourke

      Oct 14, 2018

      Good luck Glynn! Great cause x

      £10.00

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    About Crowdfunding
    About the fundraiser
    Glynn Hatton

    Glynn Hatton

    Heywood, UK

    I'm 36 years old and originally from down south but now reside as a plastic northerner in Greater Manchester with my wife Victoria , our baby daughter Ariadne and dog Luther. My family are my world so helping my sister and nephew is massive to me. Thanks for any donations.

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