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Nicola Morgan

Nicola Morgan is crowdfunding

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£1,145raised of £2,800 target by 49 supporters

Weʼre raising £2,800 to raise money for little Mari so she can have an Optilec traveller HD, by swimming the English Channel solo on 19 July 2019

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Story

My second attempt to swim the English Channel solo on 19 July 2019 is to raise money for beautiful Mari. Mari has WAGR syndrome which is a rare genetic condition that can affect both boys and girls. There are only about 300 worldwide cases and Mari is the only person in Wales with the condition. Babies born with WAGR syndrome have the eye condition Aniridia, and are at high risk for developing certain types of cancer, and possible learning delays.

From the very beginning life has been difficult for Mari and in total she has had 11 surgeries. At 12 days old she was rushed to hospital and operated on for bowel malrotation. Then her parents received the news they’d been dreading a few days before her first birthday. She was diagnosed with Wilms tumour, her treatment entailed a year of chemotherapy and surgery to remove 7 tumours from her kidneys. Mari has also had eye surgery. She is registered blind, she can see large print very close up but she is unable to see detail and cannot see more than a couple of yards in front of her. She also has no depth perception.

Mari is a loving, caring and affectionate child who charms everyone she meets. Despite Mari’s poor vision she is very determined and doesn’t give up easily. She is very much like any other child who enjoys swimming, crafts, dancing and riding her sccoter! Mari’s parents are determined that she is treated like any other child who simply needs a bit more supervision to ensure her safety. In her short life she has been through so much but she is such a happy little girl, she is really tough and doesn’t complain about anything.

Mari attends Llandwrog Primary School and loves it there. She has additional support at school and is learning braille. She requires learning aids and equipment to support her with her learning. An Optilec traveller HD will enable Mari to enlarge books and learning materials to a size which she can read, however these cost over £2,800 to buy, please help by sponsoring.

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Nicola Morgan

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    1 year ago

    Nicola Morgan started crowdfunding

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    Page last updated on: 6/23/2019 20.39

    Supporters

    49

    • Rachel collier

      Rachel collier

      Jun 23, 2019

    • Anonymous

      Anonymous

      Jun 23, 2019

      Pob lwc. Good luck 🏊‍♀️

      £20.00

    • Anwen Owen

      Anwen Owen

      Jun 23, 2019

      Pob lwc Nic! Think of the nice warm towel that will be waiting for you on the other side.

      £20.00

    • Nerys Jones

      Nerys Jones

      Jun 9, 2019

      I think you’re bonkers and amazing!! All the very best! I will be following you every stroke you swim on the day through FB. 💜

      £20.00

    • Carwyn, Llinos & Kids

      Carwyn, Llinos & Kids

      Jun 9, 2019

      Huge good luck Nic!!

      £40.00

    • Janeann Hammond

      Janeann Hammond

      Jun 9, 2019

      Well done xx

      £30.00

    • Morwen Pritchard

      Morwen Pritchard

      May 28, 2019

      Da iawn Nic. Dewr iawn a charedig.xx🌟

      £30.00

    Nicola Morgan

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    About the fundraiser
    Nicola Morgan

    Nicola Morgan

    Cardiff, UK

    I'm raising £2,800 to raise money for little Mari so she can have an Optilec traveller HD, by swimming the English Channel solo on 19 July 2019.

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