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£780raised of £2,800 target by 30 supporters

Weʼre raising £2,800 to raise money for little Mari so she can have an Optilec traveller HD, by swimming the English Channel solo on 19 July 2019

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Story

My second attempt to swim the English Channel solo on 19 July 2019 is to raise money for beautiful Mari. Mari has WAGR syndrome which is a rare genetic condition that can affect both boys and girls. There are only about 300 worldwide cases and Mari is the only person in Wales with the condition. Babies born with WAGR syndrome have the eye condition Aniridia, and are at high risk for developing certain types of cancer, and possible learning delays.

From the very beginning life has been difficult for Mari and in total she has had 11 surgeries. At 12 days old she was rushed to hospital and operated on for bowel malrotation. Then her parents received the news they’d been dreading a few days before her first birthday. She was diagnosed with Wilms tumour, her treatment entailed a year of chemotherapy and surgery to remove 7 tumours from her kidneys. Mari has also had eye surgery. She is registered blind, she can see large print very close up but she is unable to see detail and cannot see more than a couple of yards in front of her. She also has no depth perception.

Mari is a loving, caring and affectionate child who charms everyone she meets. Despite Mari’s poor vision she is very determined and doesn’t give up easily. She is very much like any other child who enjoys swimming, crafts, dancing and riding her sccoter! Mari’s parents are determined that she is treated like any other child who simply needs a bit more supervision to ensure her safety. In her short life she has been through so much but she is such a happy little girl, she is really tough and doesn’t complain about anything.

Mari attends Llandwrog Primary School and loves it there. She has additional support at school and is learning braille. She requires learning aids and equipment to support her with her learning. An Optilec traveller HD will enable Mari to enlarge books and learning materials to a size which she can read, however these cost over £2,800 to buy, please help by sponsoring.

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Nicola Morgan

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    5 months ago

    Nicola Morgan started crowdfunding

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    Page last updated on: 10/29/2018 8:47 PM

    Supporters

    30

    • Anonymous

      Anonymous

      Oct 29, 2018

      £5.00

    • Mandy Davies

      Mandy Davies

      Oct 28, 2018

      Mari is an absolute joy to be around. I work with her Dad so have followed her journey from when she was born. They are an amazing family. Good luck with your swim. ❤

      £10.00

    • Nia Lewis

      Nia Lewis

      Oct 28, 2018

      Good luck x

      £20.00

    • rhian hughes

      rhian hughes

      Oct 28, 2018

      £10.00

    • Darren Griffiths

      Darren Griffiths

      Oct 28, 2018

      Pob lwc!

      £10.00

    • Anna Madog

      Anna Madog

      Oct 28, 2018

      Carry on the good work Nicola!! Thank you so much for supporting our little Mari, you have a very big heart!! Hope Einir is behaving herself and that you are not to busy. See you soon 😘Xx

      £20.00

    • Eleri Lloyd

      Eleri Lloyd

      Oct 16, 2018

      Da iawn Nicola! Such a fantastic cause. Pob lwc xx

      £10.00

    Nicola Morgan

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    About the fundraiser
    Nicola Morgan

    Nicola Morgan

    Cardiff, UK

    I'm raising £2,800 to raise money for little Mari so she can have an Optilec traveller HD, by swimming the English Channel solo on 19 July 2019.

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