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£650raised of £2,800 target by 20 supporters

Weʼre raising £2,800 to raise money for little Mari so she can have an Optilec traveller HD, by swimming the English Channel solo on 19 July 2019

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My second attempt to swim the English Channel solo on 19 July 2019 is to raise money for beautiful Mari. Mari has WAGR syndrome which is a rare genetic condition that can affect both boys and girls. There are only about 300 worldwide cases and Mari is the only person in Wales with the condition. Babies born with WAGR syndrome have the eye condition Aniridia, and are at high risk for developing certain types of cancer, and possible learning delays.

From the very beginning life has been difficult for Mari and in total she has had 11 surgeries. At 12 days old she was rushed to hospital and operated on for bowel malrotation. Then her parents received the news they’d been dreading a few days before her first birthday. She was diagnosed with Wilms tumour, her treatment entailed a year of chemotherapy and surgery to remove 7 tumours from her kidneys. Mari has also had eye surgery. She is registered blind, she can see large print very close up but she is unable to see detail and cannot see more than a couple of yards in front of her. She also has no depth perception.

Mari is a loving, caring and affectionate child who charms everyone she meets. Despite Mari’s poor vision she is very determined and doesn’t give up easily. She is very much like any other child who enjoys swimming, crafts, dancing and riding her sccoter! Mari’s parents are determined that she is treated like any other child who simply needs a bit more supervision to ensure her safety. In her short life she has been through so much but she is such a happy little girl, she is really tough and doesn’t complain about anything.

Mari attends Llandwrog Primary School and loves it there. She has additional support at school and is learning braille. She requires learning aids and equipment to support her with her learning. An Optilec traveller HD will enable Mari to enlarge books and learning materials to a size which she can read, however these cost over £2,800 to buy, please help by sponsoring.

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Nicola Morgan

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    Page last updated on: 8/10/2018 10:15 AM



    • Olwen Guarisco

      Olwen Guarisco

      Aug 10, 2018

      Good luck x


    • Beverley Meek-welsh

      Beverley Meek-welsh

      Aug 9, 2018

      Best of luck Nicola! Makes me sea sick thinking about it🤪


    • Lena Roberts

      Lena Roberts

      Aug 3, 2018

      Thank you nicola all the best for the swim Rhys and Lena . X X


    • Elliw Jones

      Elliw Jones

      Aug 2, 2018

      Pob lwc Nicola! Mari is a lovely little girl and anything that will make her life a little bit easier is a fantastic cause. Wishing you all the best with your training! Elliw a’r teulu x


    • A Jones

      A Jones

      Jul 31, 2018

      Well done! Massive respect. Cariad mawr, Gwydion, Alaw, Macsen a Ianto xx


    • Glesni Arfon-Powell

      Glesni Arfon-Powell

      Jul 30, 2018

      Pob lwc x


    • Angharad Gwyn

      Angharad Gwyn

      Jul 29, 2018

      Pob lwc Nicola, from Mari’s next door neighbours! Angharad, Ifan, Maelan a Nyfain xx


    Nicola Morgan

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    About the fundraiser
    Nicola Morgan

    Nicola Morgan

    Cardiff, UK

    I'm raising £2,800 to raise money for little Mari so she can have an Optilec traveller HD, by swimming the English Channel solo on 19 July 2019.

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