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Nina Chesworth

Nina Chesworth is crowdfunding

2%
£160
raised of £6,000 target by 5 supporters

Weʼre raising £6,000 to The funds raised will go towards raising awareness and support for people who suffer with Charles Bonnet Syndrome (CBS).

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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Story

Esme’s Umbrella is the pioneering organisation for support, awareness and research. They helped me with no end and continue top support me.

I am determined to create more awareness of CBS and raise the much-needed funds to support those who are dealing with the condition, on top of their sight loss journey, especially in the times we find ourselves. Esme’s Umbrella have recorded that the anxiety and isolation of lock-downs have exacerbated episodes of CBS and peoples’ hallucinations have become much more frightening.

In the two years of my blindness, I have started on a wellness and self-care journey. One of the things I find helps the severity and longevity of the hallucinations is exercise – regular yoga practice and walking. 

With all of this in mind, I have decided to do a fundraising event to raise money for Esme’s Umbrella (www.charlesbonnetsyndrome.uk), I intend to walk from Exeter to Lands End - 123 miles. Why you ask? Well, my in-laws live in Cornwall and we have done many journeys down the A30. I always wondered what it would be like and how long it would take to walk it. Devon and Cornwall are such beautiful counties and I have very fond memories of the area. It is also an open and nature filled environment.   

This is an incredibly common condition which affects people who have lost over 60% of vision. It causes vivid, silent, visual hallucinations, which range from disturbing to terrifying. It is the brain firing up and creating its own images. For some, the hallucinations are constant, from the moment they wake up to the moment they go to sleep. Some see colours, shapes, patterns, blurred words, faces, characters, and then there are the scary ones, like animals with drooling snarling teeth, spiders and snakes. At least half of the 2,000,000 people in the UK with sight loss will develop CBS but there is little awareness of the condition, either among health professionals or out in the community, despite it being documented 300 years ago. Too many people assume – wrongly – that the hallucinations mean a mental health condition and confide in no one. 

Currently, Dr Dominic Ffytche - Reader in Visual Psychiatry at King’s College, London – is the sole, globally-acknowledged expert and first researcher in CBS. You can count on one hand the number of CBS research projects – and all in the UK – but, though minimal, they have helped the understanding of this perplexing condition. No two people with CBS have the same experience and much more medical, physical and psychological support is needed. Not only is there a lack of awareness and research, there is no pathway for diagnosis, treatment and support.

Thank you in advance for any contributions made and shares.

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Nina Chesworth

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    3 months ago

    Nina Chesworth started crowdfunding

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    Page last updated on: 2/18/2021 09.01

    Supporters

    5

    • Anonymous

      Anonymous

      Feb 18, 2021

      Good luck Nina

      £100.00

    • Emma Macalister

      Emma Macalister

      Feb 16, 2021

      Good luck with your walk, you are so amazing & such an inspiration x x

      £10.00

    • Lucy Webb

      Lucy Webb

      Feb 16, 2021

      Nina you are officially Wonder Woman ! I can’t wait for our next meet up! Couldn’t be prouder to be your friend ❤️

      £10.00

    • Sarah perkin

      Sarah perkin

      Feb 16, 2021

      Your amazing nina, one of the strongest women I know ❤️Xx

      £20.00

    • Nicola Metcalfe

      Nicola Metcalfe

      Feb 16, 2021

      Good Luck Sister ❤️

      £20.00

    Nina Chesworth

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    Nina Chesworth

    Nina Chesworth

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