Weʼve raised £365 to help Alfie beat Neuroblastoma, Logan Denyer Appeal, Amie Sylvester and install disabled access toilet facilities at Old Dean Bowling Club.
- Camberley, United Kingdom
- Disability support
- Time left
- Funded on Saturday, 3rd February 2018
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4 children in the vicinity of our local bowling club have not had the easiest of starts in life. As a club & a community we want to 'club together' (excuse the pun) and hold a charity event in aid of them to provide funds which will enable them to put a bit of sparkle & light back into their lives.
When our club was built back in 1965, unfortunately no thought was given to disabled access. As a club who want to welcome all, we are looking to rectify this issue and install disable access toilets. We are currently looking at a cost of approximately £15,000 for this refurbishment (which is a lot of money for a little club!!)
These are the children we are wishing to help:
Logan Denyer -I was born on the 4th December 2011 at 30 weeks gestation and weighing just 3lb 1oz , I then spent seven weeks and one day in the special care baby unit at one point around two weeks old I caught an infection called NEC I was then given full oxygen and rushed to a neonatal intensive care unit, in the time I was there I was giving all types of medication and at one point a blood transfusion , it took me around two weeks to get my full strength back and was then transferred back to the special care baby unit. Since being out of hospital i have regular visits to my paediatrician to check how i am getting on, i still have bowel problems which were caused from my NEC infection and I also have to visit a sleep clinic in London as I have problems with my sleeping. Around 11 months I went for an MRI scan about my sleeping, from this I was diagnosed with PVL Perventricular Leukomalacia, my mum and dad were told I would have learning disabilities throughout my life but only time would tell how severe it would be. In August 2012 I was diagnosed with Cerebral palsy. I have physiotherapy and occupational therapy on a daily basis, I work really hard on what's asked of me but at the same time we have lots of fun. I am now a healthy five year old boy with such a big character , also I'm a proper little chatter box and love spending time with my family and friends. I am currently able to roll with some help, also sit unaided for a few seconds, I'm still unable to crawl and walk independently but do have different types of equipment to help with everyday struggles. My left side is more affected which does cause me to use mainly my right side, my left hand is sometimes clenched especially when I'm concentrating which then makes it harder for me to do things on my own including holding cups, books and sometimes even my toys. Both of my legs are affected so i have splints to help correct my feet. I also suffer with cramps and have alot of pain in my legs following any intense physio but it does not stop me as i always work hard in everything i do. I am currently taking a medication to reduce and release the pain and tightness in my legs. I am now at Infant school and I enjoy every minute of it, I have loved meeting all my new friends and I am learning something different everyday. I have all my own equpiment here so i am able to join in with all the daily routines and activities, I also have regular Physiotherapy, Occupational therapy, Speech and language and Horse riding.Logan was born prematurely and later on was diagnosed with cerebral palsy. As Logan grows he will need certain equipment to aid him, a lot of which is not available on the NHS. You can read Logans story here: Logan Denyer Appeal
Alfie was first diagnosed with Neuroblastoma when he was only 5yrs old. At 14 he has has battled with this disease several times and is currently fighting cancer again & receiving treatment. Alfie's family are trying to raise £600k to get him to the anitbody therapy she so desperately needs. You can read his full story by clicking on the link .Help Alfie beat neuroblastoma http://www.alfiethechamp.co.uk/#story
Amie Sylvester : Amie was diagnosed with a Wilms Tumor on may 4th 2016 she had surgery to fit her port for chemotherapy a week later. On the 21st June Amie had surgery to remove her right kidney and Tumor then she had 27 weeks of chemotherapy also 2 weeks off radiotherapy. Treatment finished in January 2017 Amie now has scans every 3 months for 3 years then she will have them every 6 months for 2 years. Amie needs to be cancer free for 5 years xxxx
Tegan: Tegan was diagnosed with wilms tumour stage 4 on the 3rd August 2016 in her left kidney, during an X-ray they found that it had spread to her left lung, she had a port fitted the following week and started chemotherapy on the 15th August. The plan was for the chemotherapy to shrink her tumours by week 6 there was still no chance but they went ahead and removed her left kidney with a 14 by 10cm tumour which was also attached to her diaphragm on the 11th October. They decided to do 2 more rounds of chemotherapy to shrink the tumour in her lung but again it made no difference so they decided to operate and remove this on the 26th October, Tegan spent a night in intensive care then a further 4 days in high dependency. Results from biopsies came back on the 7th November, aggressive with unfavourable history, heartbroken again but Tegans got this! She started more intense 34 week cycle of chemotherapy and 14 sessions of radiotherapy and she's kicking cancers arse! She's on antibiotics every weekend, gcsf injections every week after chemotherapy and we have just started her final cycle! Scan and X-ray in October then every 3 months for 5 years, once her bloods stabilise she will have her port removed, and she can start her road to recovery! We've been fortunate enough to have had so much help and support so we now would love to help support other children in their time of need, the world we entered has opened our eyes to a whole different world Tegans Smile
Updates appear here
Lisa Kavanagh on behalf of Old Dean Bowling Club started crowdfunding
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Sep 29, 2017
Sep 26, 2017
Sep 18, 2017
Hope you have a great dayWe cannot make it as we are awayDebbie & JonInsideout Construction
Sep 12, 2017
Good Luck Lisa, a very worthy cause.
Sep 8, 2017
Happy fundraising guys... really hope it's a success 🙌
Sep 7, 2017
Good Luck Lisa
Sep 7, 2017
Lisa, what a great cause and well done all the best in this great support to others.
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About the fundraiser
Lisa Kavanagh on behalf of Old Dean Bowling Club
Camberley, United Kingdom
I'm Lisa, a social and committee member of Old Dean Bowling Club, Camberley Surrey. I have created this page on behalf of ODBC for funds to be raised in support of our 24hr Charity Bowling Event.
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