Diana Pavlova's Foundation

https://www.facebook.com/groups/537398400126939/

This foundation was created to help the dearest person to me, my treasure, my most beloved and dear, my sister Diana! She and my mom have a very difficult fate! Heavy cross to bear them both. Difficult fate fell to my sister and my mother. In this regard, I infinitely want to help them and therefore created a charity page to help my relatives! I really believe that you will not remain indifferent. I wish each of you well for your huge heart and bright soul. Thank you all. I have responded to the help and thank you so much for your support!

My mother's letter-

"I am the mother of a disabled girl from birth! Disability, my daughter received at birth from the error of the medical staff. It happened on May 1, 1993. The girl had a choke on 4 single cord entanglements, it was necessary to do a cesarean section, but the doctors decided that I could give birth to myself, they were just under the influence of alcohol, because this day is our National Holiday! The girl was born dead, she was reanimated and she survived, but they didn’t tell me about it, due to medical ethics. After 3 months, my daughter started having epilepsy attacks, we began to stay regularly in the local children's hospital, where we stopped the attacks with Phenobarbital. Our doctors could not make the diagnosis and we went to Germany after 2 years actually spent in a hospital! They conducted a complete survey, demanded a hospital card about the birth of my daughter and then it turned out that there was asphyxia of the brain, later from oxygen starvation during resuscitation, the brain of the rear hemisphere atrophied by 5 mm. Projections were disappointing, we were predicted that the daughter would be a vegetable , will not walk, and generally doctors offered me to abandon the child! Everything that happened to me, I worry to this day! I could not even imagine that I could refuse it! Every epileptic seizure, I thought she would not survive, holding her breath, and my heart stopped! And such attacks happened 5-7 times a day ... I do not remember how long I managed to sleep, but even in a dream, I listened to her breathing! But she grew up as she grew older, although she was lagging behind her thinking, she began to walk at 2 years old, she tried to repeat my words. She began to attend kindergarten, then home based primary school. She received further education in a school for disabled children, where she studied until the 12th grade. The girl constantly takes medications for epilepsy and uses hygiene products! In Germany, we were all given away for free! Here in our homeland in Estonia, we have to pay for everything! When I was in a boarding school, I noticed that my daughter had problems with constipation, I asked repeatedly for a bowel examination from our general practitionar and was refused by our doctor! Our doctors are afraid to take responsibility for the disabled people, it is easier for them to refuse us than to prescribe some kind of treatment! 3 times we were at the reception at the gastroenterologists, and all kept saying that it is necessary to give laxatives and follow the special diet! But I felt that my daughter already had intestinal problems and the fourth doctor, I begged the direction for a competent examination in the homeland in a large medical center. For 6 years I asked to check my daughter's intestines and that was the day that I had to wait for 3 months. Then, after consulting with the surgeon, they decided to reduce the large intestine in order to solve the problem of constipation! We waited for the operation for another year and now in 2018, on June 5 we arrived at the operation, which was planned to be successful, as planned, and after 3 days will return home! The doctors has checked daughters intestines and were horrified, it was so thin that it could tear at any moment and that’s would be an end .... they gathered a consultation and decided to remove the entire large intestine! From my words, the anaesthesiologist recorded the weight of the girl and immediately took her to the operation! More than 4 hours I painfully waited for a positive outcome, prayed and cried !!! At first, everything seemed to go well, the daughter was weak, but nevertheless came out of the anaesthesia in intensive care, I was always there, and on day 3, I went in and did not recognise my daughter, she lay with her eyes rolled up with her arms twisted and legs stretched out, as a ballerina ... I immediately felt trouble! Hysteria, screaming, crying ... the daughter again had epilepsy attacks! The doctors did not take into account the particular features of my girl’s health and went too far in the anaesthesia! She was paralysed, it was a terrible blow for me! After 3 weeks we were transported to the surgery at the place of residence, I had to come to the hospital every day, bring hygiene products and food! At the Estonian Health Insurance Fund, there is no money for everything! After another 2 weeks we were transported to the hospice, where I was hoping that nurses would help her to stand on her feet ... but nobody cared about us ... all the services that we were not provided with, I also had to pay! In a wheelchair, we returned home ... the first time I had to carry a daughter in my arms around the flat… our health visitor, we only had ones in our house! And I had to learn everything by myself! To buy and put bags on the ileostomy. Thanks God there is internet platform and I have to watch a lot of video and then put it into practice. We have a catastrophic lack of diapers and everything that is needed for a stoma !!! In Estonia, everything is paid, even for people with a lifelong retirement 100% disabled with a deep degree! It turns out my daughter got a disability twice because of a medical mistake! We have nowhere to find help, we have neither grandmothers or grandfathers or relatives. We are in a very difficult financial situation, due to the payment of my stay during the operation and further spending time with my daughter, there is not enough allocated pension to pay off debts and purchase hygiene products!

As soon as the locomotor system is restored, as the daughter walks with me by the arm, she can fall alone. Disrupted vestibular apparatus after anaesthesia. We will prepare for re-operation for the establishment of an artificial implant of the large intestine. Just one thought about it, I start to panic, fear and memories of our experiences, but we must do it!

Rehabilitation for her is probably free, but I will have to pay for myself again, since the daughter is already an adult, the hospital is 2 hours away from our house, I will have to stay with her and pay the full amount for a bed of 30 euros per day. We need permanent hygiene products that cost us dearly in Estonia - diapers, stoma bags, waterproof diapers for beds, sanitary pads, deodorants, medicines and much more. All of this doesn’t give us a 100 percent discount, so we have to buy everything with our last money.

We create an auction for the sale of paintings to help my daughter, please do not be indifferent, we asking to support us and we will be very grateful to you. Let these pictures warm you soul, your huge heart and your mood for many years. Thank you all so much for your help!"