Weʼre raising £5,000 to help fund my brave son a specialist feeding assessment to determine why he cannot eat. The NHS Wales have not provided this.
- 14 days to go
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Oliver was born with a heart defect and had open heart surgery at 4 months, as a result he was restricted to a NG feeding tube and revieves all his feeds via this NG feeding tube.
Oliver is my son and he is my superhero, but to see him with this NG feed makes me so upset because every week he pulls this out and we have to re-insert this tube which causes severe trauma and pain to him.
The NG feeding tube also causes vomiting, the increased risk of aspiration and for Oliver to be seen as different to every 2 year old child. The NG tube causes damage to his skin. Please see pictures below.
The NHS in Wales have no answers apart from a PEG which would insert the feeding tube into his stomach rather than his nose, this will not teach Oliver to eat it will just replace the problem to somewhere else. The current waiting list is a year.
The midlands psychology (NHS) provides psychological treatment and are the only provider with clinical evidence of feeding disorders. This treatment will not involve any invasive surgery, but psychological treatment. Oliver deserves to be given this chance to be able to eat and avoid any more trauma of the NG feeding tube.
Please help us raise money for Oliver to meet his health needs which would allow us to fully fund a specialist assessment.
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Philip Webber started crowdfunding
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May 8, 2018
May 6, 2018
Read your story & my little ones the same age, can’t imagine how distressing this must be! I don’t you, but wish you every success in getting your little man eating.
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