I've raised £3500 to help my 10 year old daughter Ollie, who has CRPS, and is in constant pain, have treatment in Italy. 08/19 changed to Calmare therapy Ireland

Organised by Georgina Nott
Donations cannot currently be made to this page
Health and medical

Story

A year ago, my energetic, gymnastic loving Ollie, started to have issues with her knee, after an operation to repair her knee Cartilage. She was on and off crutches for 6 months and in October 2018, she took her last steps unaided. She was diagnosed with CRPS (Complex Regional, Pain, Syndrome). Ollie was a fun loving, extremely funny 10 year old, who had her whole life in front of her. Despite working really hard in Physio, Ollie could not walk due to the pain. CRPS pain is described as a burning pain like you are on fire and worse than childbirth, but 24 hours a day. Her whole life changed from that point, she could no longer play like her friends in the play ground, started doing half days at school and missed whole days where she was completely bed bound due to the pain. By Feb 2018, the CRPS had spread to her whole right side of her body and her whole torso. It was at this point, Olivia gave in and spent most of her days in her wheelchair, both at school and at home. The spark in Ollies eye had gone. CRPS is an incredibly rare condition and there is no known cure licenced in the UK. CRPS is a condition that can affects every nerve in your body. The hardest part of watching Ollie, is seeing her wake up every day in pain. Even when she is able to use crutches, she is so exhausted, she can not participate in normal 10 year old activities. CRPS also causes extreme sensitivity to any touch. Clothing, shoes, bed sheets and even a mummys cuddle causes her pain. I as a mum, want to raise the money to take Ollie to Italy to have the Neridronate Infusions treatment, that is not a cure, but can dramatically improve her experience of life, by reducing her pain and possibly giving her, her future back 08/19 Ollie worked so hard on Physio to be able to walk again, but is still in continuous pain. Due to Ollie being too young for the Italian treatment, we are embarking on Calmare therapy in Ireland, to target the pain. the cost is similar but needs maintaining 4 times a year.

Help Georgina Nott

Sharing this cause with your network could help raise up to 5x more in donations. Select a platform to make it happen:

You can also help by sharing this link on:

About fundraiser

Georgina Nott
Organiser

Donation summary

Total
£6,395.00