Weʼve raised £1,370 to fund the awareness of Battens Disease and we would love your support
- Funded on Sunday, 3rd May 2020
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Siblings Ollie and Amelia have been diagnosed with CNL2Battens Disease. A very rare neurodegenerative condition which affects the brain and nervous system. Batten Disease is always fatal. There is no cure. There is however a treatment that will slow down the progression of the disease and improve a child's quality of life. Ollie's Army spent years fighting for this treatment which is now available for Ollie, Amelia and all children diagnosed with Battens in the UK. Early diagnoses is vital to give the children the best quality of life.
Eleanor, Sarah & Maria want to support Ollie's Army in their campaign to raise awareness in order to get these children the treatment they need sooner rather than later.
To do that we have decided to travel almost five thousand miles to run the Dubai Marathon! We are hoping to raise as much awareness as possible on the journey and whilst running the 42 kilometer course. We would like to ask for your help & sponsorship to fund the awareness campaign as well as fund much needed equipment that Ollie & Amelia need daily to live a comfortable life.
We understand this comes just after Christmas & we appreciate whatever you can give. Every little goes a long way
Thank you Eleanor, Sarah & Maria
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Eleanor Burke started crowdfunding
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Feb 12, 2020
Well done from PE Didsbury
Feb 2, 2020
Massive well done Ellie, really proud of you and for all that you do to help Ollies Army love Kirsty Xx
Jan 31, 2020
Well done girls ❤️
Jan 30, 2020
Great job girls! Love from Rachel Dan & Buddy
Jan 30, 2020
Congratulations on the Dubai marathon from gaz kate grace & Lewis x
Jan 29, 2020
Huge well done Ellie and team - you smashed It! Amazing women running for an amazing charity. Huge well done from the Porters xx
Jan 27, 2020
Massive well done
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