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Dan Bleaken raised £4,190 from 128 supporters

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Closed 05/09/2018

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£4,190raised of £5,000 target by 128 supporters

    Weʼve raised £4,190 to send Emily for intensive physiotherapy at the Footsteps Centre near Oxford, to help her learn to walk.

    Funded on Wednesday, 5th September 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Emily is 7 years old. She was born with a rare chromosome disorder called 1p36 deletion syndrome. As a result of this, she has complex needs. These include low muscle tone (hypotonia), bilateral hearing loss, a heart condition called cardiomyopathy, and severe learning difficulties. She is non-verbal and communicates through signing Makaton, and a communication aid (computer).

    When Emily was diagnosed at 8 months old, we were told by that the doctors that they just didn’t know whether Emily would walk or not, as her condition is so rare. We have always hoped she would, and have spent many hours working on building her core strength. Recently, we have noticed how much stronger and controlled Emily is becoming, and she can now walk with us holding her hands, albeit rather unsteadily!

    We have heard many great things about a centre in Oxford called Footsteps. It is a privately run centre that uses physiotherapy techniques from abroad to help children up to 18 years with a variety of conditions. Some other children with 1p36 deletion syndrome have been, and their parents have been amazed by the positive results. It costs £1700 to send someone for 3 weeks of physio – 2 hours a day. One hour on the mat, and the other hour in something called the ‘spider’ which consists of stretchy ropes that are attached to the child to help build strength and balance.

    In May we took Emily there for an 'assessment' session. We have felt, and the specialists at Footsteps agree, that because Emily is so close to walking independently, a 3 week course at the centre would really help boost her ability to walk, and her general independence.

    This crowdfunding page is just one of the ways in which we are hoping to raise the money. Many kind friends and family members are offering to organise events on our behalf (quiz night, car boot sale, plant sale, half marathon, forest school day...) and we really are so grateful and overwhelmed by the enthusiasm shown by everyone to help Em on her journey.

    We are hoping to send Emily in July as they have space available, depending on timings. We will keep everyone updated here to let you know how she gets on!

    lots of love, and many thanks,

    Dan, Mels, Emily and Tom xxxx

    Updates

    12

    • Dan Bleaken3 months ago
      Dan Bleaken

      Dan Bleaken

      3 months ago

      Hello everyone, just to let you know that this crowdfunding page closes in 2 days. Anybody who has been meaning to donate, but hasn't, last chance! To everybody else thanks again for all of your kind support. Mels, Dan, Emily and Tom x

      Share this update to help us raise more

    • Dan Bleaken4 months ago
      Dan Bleaken

      Dan Bleaken

      4 months ago

      Sorry for the lack of updates... We're delighted to say that Emily's time at Footsteps was incredible and inspiring; she made great progress and all of it with a big smile on her face! We can't wait to take her back for another course. Thanks to everyone's wonderful generosity we have the money for that now, and can book it up. It's already made a difference to Emily's independence and to our lives. Many thanks once again, Mels, Dan, Emily and Tom xxx

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    • Dan Bleaken5 months ago
      Dan Bleaken

      Dan Bleaken

      5 months ago

      One... Two... Three... Four...five... Steps closer... 😀

      Update from the Page owner

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    7 months ago

    Dan Bleaken started crowdfunding

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    Page last updated on: 9/4/2018 6:33 AM

    Supporters

    128

    • Laura Hobbs

      Laura Hobbs

      Sep 4, 2018

      Go for it Emily! X

      £5.00

    • Sam, Stefun, Jago & Otis xx

      Sam, Stefun, Jago & Otis xx

      Sep 3, 2018

      Wish we could donate more, we know how much this means to you and we love following Emily’s journey! Good luck for the next block of sessions, we promise to get a date sorted to see you next time xx

      £10.00

    • Nina Holyer

      Nina Holyer

      Sep 3, 2018

      A small donation from myself, Aimee, Eddie and Theo and lots of luck for contiunue progress with the physio and walking Emily. XX

      £20.00

    • K Perks

      K Perks

      Aug 3, 2018

      A journey of a thousand miles starts with a single step. love to Emily

      £100.00

    • Emma Trueman

      Emma Trueman

      Jul 13, 2018

      Sending you all lots of love. I hope Emily enjoys her time at the centre and gets lots out of itLots of loveEm stu kinder and bean xxx

      £100.00

    • Kate Hathaway

      Kate Hathaway

      Jul 9, 2018

      Hope today is the start of wonderful times for Emily!

      £10.00

    • Pauline Laraway

      Pauline Laraway

      Jun 24, 2018

      £15.00

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    Dan Bleaken

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