Ophelia has a very complex chromosome disorder which has various complications, one of which is severe hypotonia.

Hypotonia, by definition, is an issue with the body's neuromuscular system, causing low muscle tone (or floppy muscles) and an associated weakness within the body. This means Ophelia finds it really difficult to move herself independently without an adult, or various equipment to support her. 

She currently has a rehab buggy from the NHS, but we would like to get her a self-propelling wheelchair so she can move herself without having to rely on an adult.

It would also provide her with a new view on the world, whilst developing lifelong cognitive skills, affording her the gift of being able to move herself around freely.. 

Unfortunately, the NHS are not able to fund one which is suitable for Ophelia‘s needs, so we are having to source a chair privately. 

As you can imagine, a wheelchair is a very specialised piece of equipment. In particular, it has to be designed specifically for Ophelia, and so bespoke medical equipment comes at significant financial cost.

We would love to give her the independence she deserves and craves, like other children her age. 

Here are the challenges we are completing in the next few months, along with some of our lovely friends and family:

Ophelia is walking 5k in her walker throughout March/April/May.

Amazing Anna and Sally (our CrossFit friends) are running 50miles between them on a treadmill on Saturday 4th April.

Wonderful Nicki is running London. marathon on Sunday 26th April.

CrossFit TAG are doing a fundraiser on Saturday 2nd May.