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Bryony Morris

Bryony Morris is crowdfunding

212%
£2,425
raised of £1,139 target by 78 supporters

Weʼre raising £1,139 to help Parathyroid UK trial a new home calcium tester.

Birmingham, United Kingdom
4 days to go

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

In the Summer of 2019, Finn started to feel unwell. Finn was 23 and had recently finished university. Her mum encouraged her to go to the doctor noticing that Finn's thyroid was swollen.

One GP at her university surgery told her she had tonsillitis. But luckily, Finn saw a second doctor that listened to her symptoms and sent her for further tests. A few weeks later Finn was diagnosed with papillary carcinoma, otherwise known as Thyroid Cancer.

Two operations later, Finn's thyroid (and the cancer) had been removed. But in doing so, her surgeons also permanently damaged her parathyroid glands. At the time, this didn't mean anything to her, or to us, her family.

With low (or no) parathyroid hormone, your calcium blood levels drop which can be life threatening. Symptoms of low calcium can include: pins and needles, extreme fatigue, muscle cramps, anxiety and in extreme situations seizures and cardiac arrest. Long term effects include kidney damage and kidney failure. In the months after Finn's second operation she was admitted to A&E multiple times for dangerously low calcium levels.

Hypoparathyroidism is extremely rare - one study says that 27 in 100,000 people are diagnosed with it. There is no cure. And many doctors are unaware of the symptoms or how to treat it - when Finn was recently admitted to A&E the doctor was googling her diagnosis on their phone whilst treating her. Once diagnosed, people are given calcium tablets and an active form of vitamin D and left to manage their own calcium levels - in a similar way to those diagnosed with diabetes.

However, unlike diabetes, there is currently no replacement hormone available and no way to test or monitor calcium levels at home. Patients are left to rely on symptoms, which is why many end up admitted to A&E with dangerously low or high calcium. Each time potentially causing further long-term health conditions, such as kidney and liver problems.

We are raising money to help Parathyroid UK raise money to trial a home calcium tester. This will give hypoparathyroidism sufferers like Finn, who is now 24, a future ahead of her where they will be able to monitor their own levels when needed and be in control of their own health a little more.

As a family team of four, we are cycling, running, walking and swimming the length of the UK, from Lands End to John o' Groats from our homes over sixty days. We want to raise awareness of this rare disease and raise the same amount of money as miles for Parathyroid UK. Please support us on our journey and support Parathyroid UK with your donations!

https://parathyroiduk.org/

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Updates

2

  • Bryony Morris3 months ago
    Bryony Morris

    Bryony Morris

    3 months ago

    Over the past six days we have travelled 140miles! That's the equivalent distance from Land's End to Tiverton! We're ahead of schedule thanks to your amazing donations and support! But we're not stopping yet. Your support has made us even more determined to keep raising awareness and funds for Parathyroid UK. THANK YOU!

    Update from the Page owner

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  • Bryony Morris3 months ago
    Bryony Morris

    Bryony Morris

    3 months ago
    Update from the Page owner

    A huge thank you to everyone who has donated so far! We are overwhelmed by your support and can't quite believe we have hit our target in the first week! Your messages also mean so much to us and keep us going when our legs are aching or we're struggling to get out for a run or on the bike. At the end of the week I'll let you know how many miles we've travelled and where we would be if we weren't in lockdown! We would love it if you could keep sharing Finn's story and spread the word about hypopara. Thank you so much again ❤️

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4 months ago

Bryony Morris started crowdfunding

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Page last updated on: 6/21/2021 16.19

Supporters

78

  • Tom

    Tom

    Jun 21, 2021

    £30.00

  • Martyn&Mandy

    Martyn&Mandy

    Jun 12, 2021

  • Anonymous

    Anonymous

    Jun 11, 2021

    £40.00

  • Anonymous

    Anonymous

    Jun 9, 2021

    £20.00

  • Anonymous

    Anonymous

    Jun 3, 2021

    £20.00

  • Kiran

    Kiran

    Jun 2, 2021

    Great job guys!

    £30.00

  • Katie Smith

    Katie Smith

    Jun 2, 2021

    £20.00

Bryony Morris

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About the fundraiser
Bryony Morris

Bryony Morris

Birmingham, United Kingdom

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