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Bryony Morris raised £2,425 from 78 supporters

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Closed 28/06/2021

212%
£2,425
raised of £1,139 target by 78 supporters

    Weʼve raised £2,425 to help Parathyroid UK trial a new home calcium tester.

    Birmingham, United Kingdom
    Funded on Monday, 28th June 2021

    Don't have time to donate right now?

    Story

    In the Summer of 2019, Finn started to feel unwell. Finn was 23 and had recently finished university. Her mum encouraged her to go to the doctor noticing that Finn's thyroid was swollen.

    One GP at her university surgery told her she had tonsillitis. But luckily, Finn saw a second doctor that listened to her symptoms and sent her for further tests. A few weeks later Finn was diagnosed with papillary carcinoma, otherwise known as Thyroid Cancer.

    Two operations later, Finn's thyroid (and the cancer) had been removed. But in doing so, her surgeons also permanently damaged her parathyroid glands. At the time, this didn't mean anything to her, or to us, her family.

    With low (or no) parathyroid hormone, your calcium blood levels drop which can be life threatening. Symptoms of low calcium can include: pins and needles, extreme fatigue, muscle cramps, anxiety and in extreme situations seizures and cardiac arrest. Long term effects include kidney damage and kidney failure. In the months after Finn's second operation she was admitted to A&E multiple times for dangerously low calcium levels.

    Hypoparathyroidism is extremely rare - one study says that 27 in 100,000 people are diagnosed with it. There is no cure. And many doctors are unaware of the symptoms or how to treat it - when Finn was recently admitted to A&E the doctor was googling her diagnosis on their phone whilst treating her. Once diagnosed, people are given calcium tablets and an active form of vitamin D and left to manage their own calcium levels - in a similar way to those diagnosed with diabetes.

    However, unlike diabetes, there is currently no replacement hormone available and no way to test or monitor calcium levels at home. Patients are left to rely on symptoms, which is why many end up admitted to A&E with dangerously low or high calcium. Each time potentially causing further long-term health conditions, such as kidney and liver problems.

    We are raising money to help Parathyroid UK raise money to trial a home calcium tester. This will give hypoparathyroidism sufferers like Finn, who is now 24, a future ahead of her where they will be able to monitor their own levels when needed and be in control of their own health a little more.

    As a family team of four, we are cycling, running, walking and swimming the length of the UK, from Lands End to John o' Groats from our homes over sixty days. We want to raise awareness of this rare disease and raise the same amount of money as miles for Parathyroid UK. Please support us on our journey and support Parathyroid UK with your donations!

    https://parathyroiduk.org/

    Updates

    2

    • Bryony Morris8 months ago
      Bryony Morris

      Bryony Morris

      8 months ago

      Over the past six days we have travelled 140miles! That's the equivalent distance from Land's End to Tiverton! We're ahead of schedule thanks to your amazing donations and support! But we're not stopping yet. Your support has made us even more determined to keep raising awareness and funds for Parathyroid UK. THANK YOU!

      Update from the Page owner

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    • Bryony Morris8 months ago
      Bryony Morris

      Bryony Morris

      8 months ago
      Update from the Page owner

      A huge thank you to everyone who has donated so far! We are overwhelmed by your support and can't quite believe we have hit our target in the first week! Your messages also mean so much to us and keep us going when our legs are aching or we're struggling to get out for a run or on the bike. At the end of the week I'll let you know how many miles we've travelled and where we would be if we weren't in lockdown! We would love it if you could keep sharing Finn's story and spread the word about hypopara. Thank you so much again ❤️

      Share this update to help us raise more

    9 months ago

    Bryony Morris started crowdfunding

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    Page last updated on: 6/21/2021 16.19

    Supporters

    78

    • Tom

      Tom

      Jun 21, 2021

      £30.00

    • Martyn&Mandy

      Martyn&Mandy

      Jun 12, 2021

    • Anonymous

      Anonymous

      Jun 11, 2021

      £40.00

    • Anonymous

      Anonymous

      Jun 9, 2021

      £20.00

    • Anonymous

      Anonymous

      Jun 3, 2021

      £20.00

    • Kiran

      Kiran

      Jun 2, 2021

      Great job guys!

      £30.00

    • Katie Smith

      Katie Smith

      Jun 2, 2021

      £20.00

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    About the fundraiser
    Bryony Morris

    Bryony Morris

    Birmingham, United Kingdom

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