My name is Jenna McDonnell.
Patrick Pullen, my nephew, was born on March 18th 2017 with a rare condition called Grin2B. It's so rare that there are only about 500 known cases in the world.
This condition affects Patrick's neurological and physical development.

For the past 8 years I have been holding charity events to help support children in the Newport area with difficulties like Patrick, unaware that he would come into the world also needing help.

As he's getting older and bigger he needs more specialist equipment, wheelchairs and therapy.

Now Patrick has been diagnosed, I want to make this years event greater than ever. Not just to support Patrick, but to create awareness for this rare condition.

The money raised will go towards specialist equipment to support Patrick.

My sister and her husband are truly an inspiration to everyone. They have such a beautiful family despite all the difficulties and challenges they face daily. Always giving to everyone else and ignoring their own needs. I really want to show them how much everyone cares for and loves them.

💕Details of the event.

💕March 18th 2023
💕At Jenna McDonnells,
440 Chepstow road, Newport.

On the day....

❤️I will be completing my usual GWR challenge.'Hair up' for just £10 pp. to book an appointment follow the link below:

www.jennamcdonnell.co.uk/patrickpullen

Also...
❤️Local artist Mark Everson will be undertaking a drawing marathon. On the day Mark will complete a Detailed portrait of Welsh sports presenter Ali Drew...
Mark has raised lots of money for local charities over the years..we are so grateful to have him on 'Team Patrick'

❤️Patrick’s brothers, Sam and Vincent, will be doing various football challenges throughout the day.

❤️Cake sales,raffles,special guest appearances,photos with 'Paddy' the St Patrick's day mascot,nail painting, music and the rugby 6 nations final on the big screen.with half time curry too!

.... We're going to make it a day to remember!

We hope you can make it!!