Weʼve raised £405 to Raise funds to support the NSPKU to support people in the UK living with Phenylketonuria (PKU)
- Bournemouth, UK
- Funded on Tuesday, 4th December 2018
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Paul is going to take part in a 24 hour endurance race on his beloved Husky, and we thought it was a fantastic opportunity to raise some money for a charity supporting a cause close to our hearts. The NSPKU supports people living with PKU. As most of you know our wonderful Reuben has Phenylketonuria(PKU), a metabolic disease which was discovered at 11 days old when the resullts of his heel prick test were done.
Reuben must follow a very strict low protein diet in order for him to develop normally and live his life to the full.
Reubens body does not produce a chemical that breaks down one of the amino acids of protein, phenylanaline(Phe). We take Roo’s blood weekly and send it off to ensure that the levels of Phe in his blood are safe and it also helps his dieticians calculate how much protein he can have a day. Alongside his low protein diet, most of which is prescription foods, Reuben must take supplements, to provide him with all the protein he needs to develop, but without the Phenyanaline.
Supplements are not exactly nice tasting, and for a three year old, understanding the importance of taking them isnt something that Roo has grasped yet. Earlier this year he had to have a Nasal Gastric tube fitted in order for us to ‘force’ feed his supplement, which as you can imagine was not fun for him and also meant a lot of restrictions on his life at that time.
Reuben is a happy, funny, bright little three year old, who has an adoring big brother and parents who would do anything to make sure he lives the healthiest, happiest and fun filled life he can.
The future for PKU patients is looking bright, drugs are being made, though not yet availible in the UK, we hope that sometime in Reubens life something will be there to help make managing PKU a bit easier.
If there is one thing Reuben absolutely loves it is motorbikes, even better still, his wonderful dad on a motorbike, so what better way to raise money for a charity helping our little man.
Please have alook at the NSPKU sote below for any information on PKU and how they support patients.
And here is the race info for those interested!
Thank you for reading and thank you for any amount you are able to donate.
Love Tabitha and Paul
Updates appear here
Paul Feltham started crowdfunding
Leave a message of support
Aug 27, 2018
Well done Paul, you absolute machine! Proud of you and all you and Tabi do for Roo and this super important cause! Love Amber and Jan ♡♡
Aug 26, 2018
Congratulations! Sounds absolutely brutal!!! Amazing cause, absolute disaster for my pocket . . . Lots and lots of love xxx
Aug 25, 2018
Good luck mate
Grandma & PaPa
Aug 15, 2018
Good luck Paul!!
Aug 15, 2018
Aug 13, 2018
Something that is very close to our hearts ♥️ good luck with the fundraising & keep smiling xx
Aug 13, 2018
We love you Feltham family. Jeff and Gerixx
Crowdfunding stories like this
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!About Crowdfunding