Taylor is a happy 4 year old boy with congetial heart disease he was born at 38 weeks by section rushed straight to ICU where he spent 4 days before having major open heart surgery since he's had 2 heart operation now planning for a 3rd he has global development delay severe Austuim learning disabilities he can't walk or talk relays on me as his mum 24.7 I'm his everything he can't do for himself he attended men cap children's centre for one year and tomorrow he starts his new journey in a special needs school long term sadly the EA once again have let Taylor down with transport after saying he would get a bus he now to get a wheel chair taxi yet again said he will have a adopted seat as he can't sit unaided they've now changed it to he has nothing !! His OT point blank refused to purchase Taylor a special need snappi pushchair for transport so in order to get my son from AB in a taxi bus it will cost inaround £2000 for a brand new snappi pushchair which is adopted for special transport unfortunately this is money I just simply have would gave my life to save my wee boy broke my heart he left in limbo yet again having to try and provide a special pushchair for him.for his own comfort and safety xx from a very sad congetial Heart disease mummy