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Maria Reilly raised £28,580 from 612 supporters

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Closed 22/09/2021

0%
£28,580
raised of £27,335 target by 612 supporters

    Weʼve raised £28,580 to help get my Granddaughter and family medical repatriation to the UK from overseas.

    Funded on Wednesday, 22nd September 2021

    Don't have time to donate right now?

    Story

    My 11yo granddaughter is critically ill abroad. I'm fundraising for a medical evacuation flight, so she can get home to the UK for specialist treatment.

    She has PANDAS, an autoimmune disorder which causes inflammation in the brain. She has been left bedridden, too weak to lift her head.

    PANDAS is a debilitating condition that causes the immune system to get derailed from its usual infection-fighting role & attacks the brain. It can trigger OCD, restrictive eating, severe anxiety & other symptoms of mental illness & neurological problems –in the worst cases, seizures, respiratory failure & death.

    The similarity to other conditions makes 🐼 very difficult to diagnose, & in my granddaughter's case, being autistic, it took 2 years. In this time, her condition worsened considerably. She had to have surgery to clear her bowels due to a severe anxiety about toileting. She stopped eating & drinking, eventually collapsing, needing to receive IV fluids & tube feeding in hospital.

    She is malnourished & needed in-patient care to reintroduce food as a sudden shift in electrolytes as the body metabolises food can be fatal. The family were urged to return to the UK as a matter of urgency as this was not available to her.

    PANDAS has caused her to have OCD, separation anxiety, tics, sensory issues & at times feel suicidal. It's stealing her childhood. She went from a sociable, happy 9 year old to not being able to leave the house, losing her friends, a shell of her former self. Their family life has been destroyed. PANDAS is a treatable condition, the sooner treatment is received, the better the recovery. She is in desperate need of help & needs to get home as a matter of urgency.

    Her parents had to resign from their jobs in order to bring her back to the UK for treatment. She will require either a stretcher on a commercial flight or a medical evacuation flight. So I ask you to find it in your heart to donate to help me bring my granddaughter back to the UK.

    Updates

    7

    • Maria Reilly3 years ago
      Maria Reilly

      Maria Reilly

      3 years ago

      She's home! We're exhausted but so relieved! We're already noticing improvements. Funds raised have helped us have an adapted flight, medical bed & more. It's generally made this journey possible. It took us 4 months to get home & it wasn't happening until this page was launched. It's allowed us to breathe! Many people have kindly donated since reaching our target and this will support us moving forward but if you'd like to help other families who are struggling with PANDAS please go to www.panspandasuk.org where you can also donate. TY x

      Update from the Page owner

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    • Maria Reilly3 years ago
      Maria Reilly

      Maria Reilly

      3 years ago
      Update from the Page owner

      We've had incredible news today. We have been granted exemption from managed hotel quarantine and allowed to do this in our home home and therefore be able to access medical care that Roberta needs. This is such a huge relief. Thank you all so so much. We fly this weekend and are gearing up for the next step in our journey. We're almost home!

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    • Maria Reilly3 years ago
      Maria Reilly

      Maria Reilly

      3 years ago

      We're having a hard time getting exemption to safely quarantine at our home in Essex. Despite proving that the managed hotel facilities would be detrimental to the health of our child, we have been rejected twice. We have now began legal action. This would not have been possible without your generous donations and to see that they're still coming in is comforting. Your support means so much to us and in every way that it is offered, it all helps hugely. Thank you so so much. We will keep fighting for our child's safety & recovery.

      Update from the Page owner

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    3 years ago

    Maria Reilly started crowdfunding

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    Page last updated on: 7/4/2021 17.42

    Supporters

    612

    • Jodi Booty

      Jodi Booty

      Jul 1, 2021

      Sending lots of love and wishing you a safe journey home. Thinking of you all ❤️

      £10.00

    • Achara Fitzpatrick

      Achara Fitzpatrick

      Jun 30, 2021

      I hope you can get your daughter home as quickly as possible, to get the care she needs.

    • Anuva Deegan

      Anuva Deegan

      Jun 30, 2021

      We know the family, they are just wonderful people. Roberta will get well very soon, sending our love strength and support to all of you. Xx

      £100.00

    • Jarman Family

      Jarman Family

      Jun 28, 2021

      Wishing you the very best of luck in UK

      £100.00

    • Anonymous

      Anonymous

      Jun 28, 2021

      £50.00

    • Judy Evans

      Judy Evans

      Jun 27, 2021

      Let's hope you raise enough to get your beautiful granddaughter home and get the treatment she needs

      £10.00

    • Anonymous

      Anonymous

      Jun 27, 2021

      £100.00

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    Maria Reilly

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