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Maria Reilly raised £28,580 from 612 supporters
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Closed 22/09/2021
Weʼve raised £28,580 to help get my Granddaughter and family medical repatriation to the UK from overseas.
- Funded on Wednesday, 22nd September 2021
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Story
My 11yo granddaughter is critically ill abroad. I'm fundraising for a medical evacuation flight, so she can get home to the UK for specialist treatment.
She has PANDAS, an autoimmune disorder which causes inflammation in the brain. She has been left bedridden, too weak to lift her head.
PANDAS is a debilitating condition that causes the immune system to get derailed from its usual infection-fighting role & attacks the brain. It can trigger OCD, restrictive eating, severe anxiety & other symptoms of mental illness & neurological problems –in the worst cases, seizures, respiratory failure & death.
The similarity to other conditions makes 🐼 very difficult to diagnose, & in my granddaughter's case, being autistic, it took 2 years. In this time, her condition worsened considerably. She had to have surgery to clear her bowels due to a severe anxiety about toileting. She stopped eating & drinking, eventually collapsing, needing to receive IV fluids & tube feeding in hospital.
She is malnourished & needed in-patient care to reintroduce food as a sudden shift in electrolytes as the body metabolises food can be fatal. The family were urged to return to the UK as a matter of urgency as this was not available to her.
PANDAS has caused her to have OCD, separation anxiety, tics, sensory issues & at times feel suicidal. It's stealing her childhood. She went from a sociable, happy 9 year old to not being able to leave the house, losing her friends, a shell of her former self. Their family life has been destroyed. PANDAS is a treatable condition, the sooner treatment is received, the better the recovery. She is in desperate need of help & needs to get home as a matter of urgency.
Her parents had to resign from their jobs in order to bring her back to the UK for treatment. She will require either a stretcher on a commercial flight or a medical evacuation flight. So I ask you to find it in your heart to donate to help me bring my granddaughter back to the UK.
Updates
7
- 3 years ago
Maria Reilly
3 years agoShe's home! We're exhausted but so relieved! We're already noticing improvements. Funds raised have helped us have an adapted flight, medical bed & more. It's generally made this journey possible. It took us 4 months to get home & it wasn't happening until this page was launched. It's allowed us to breathe! Many people have kindly donated since reaching our target and this will support us moving forward but if you'd like to help other families who are struggling with PANDAS please go to www.panspandasuk.org where you can also donate. TY x
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- 3 years ago
Maria Reilly
3 years agoWe've had incredible news today. We have been granted exemption from managed hotel quarantine and allowed to do this in our home home and therefore be able to access medical care that Roberta needs. This is such a huge relief. Thank you all so so much. We fly this weekend and are gearing up for the next step in our journey. We're almost home!
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- 3 years ago
Maria Reilly
3 years agoWe're having a hard time getting exemption to safely quarantine at our home in Essex. Despite proving that the managed hotel facilities would be detrimental to the health of our child, we have been rejected twice. We have now began legal action. This would not have been possible without your generous donations and to see that they're still coming in is comforting. Your support means so much to us and in every way that it is offered, it all helps hugely. Thank you so so much. We will keep fighting for our child's safety & recovery.
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Maria Reilly started crowdfunding
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Supporters
612
Jodi Booty
Jul 1, 2021
Sending lots of love and wishing you a safe journey home. Thinking of you all ❤️
£10.00
Achara Fitzpatrick
Jun 30, 2021
I hope you can get your daughter home as quickly as possible, to get the care she needs.
Anuva Deegan
Jun 30, 2021
We know the family, they are just wonderful people. Roberta will get well very soon, sending our love strength and support to all of you. Xx
£100.00
Jarman Family
Jun 28, 2021
Wishing you the very best of luck in UK
£100.00
Anonymous
Jun 28, 2021
£50.00
Judy Evans
Jun 27, 2021
Let's hope you raise enough to get your beautiful granddaughter home and get the treatment she needs
£10.00
Anonymous
Jun 27, 2021
£100.00
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