we knew there was a problem before she was born. The doctors said she had no chance but we did not give up hope for her she may get tired out easily but she is my little sister. She is mischievious and happy 24/7 but she was in hospital for a year then went back 6 months later and then went for 4 months but the only good thing about it is the fact she came home 3 days later after my birthday it was a brilliant late birthday gift. But now the really though times has come. And it is super hard right now espically since her and her twin sister just started pre-school.