I've raised £1000 to Project Stay True Help raise money to buy new divisibility Aids .

Organised by Fiona Purdon
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Chester-le-Street, Chester le Street, UK ·Disability support

Story

Hi there all . I have never used this site before . We are calling this Project stay true .

I am trying to raise funds on behalf of my beloved partner .

The following text is in the words of my partner his self .

..PROJECT STAY TRUE. .

Disability Access funding.

Accessing life is often taken for granted.

I face many barriers in my day to day life.

I have physical and mental health needs that leave me more dependent on others that I would like.

I currently require 24/7 care.

I am a 24/7 seizure risk.

This can involve onset paralysis and/or amnesia.

I have PTSD.

This can involve severe anxiety(panic attacks, flashbacks,dissociation,and/or seizures).

I have severe ME(since 18 and im now 35).

I have a damaged nervous system that has to completely relearn how to move and function due to being bedbound long-term.

I have severe hypermobility.

I have severe muscular atrophy (wastage).

I have severe Fibromyalgia(since 18 years old).

I have severe sciatica.

I have severe Complex Regional Pain Syndrome.Most commonly effecting my legs and feet.

I have severe POTS.

I have severe Depression.

*All of the above have been diagnosed.I have likely missed some out due to the shere complex and extensive nature that exists within that known as my body.

I am on a journey of ownership of self.

A journey to STAY TRUE.

Thus Project Stay True was born.

A project to kick down physical barriers stopping me from accessing a greater quality of life.

I can't access medical services.

I can't access the support i need.

I need my outside to meet my inside.

I can't access my whole house.

I have to be lifted in a partly dismantled wheelchair to get out of my front door.

A wheelchair that does not meet my physical needs.

A wheelchair that has to be pushed by my also disabled partner.As an ongoing concern this ia not viable.

I am fighting hard and doing intensive daily physio in my home but it is not enough without adaptations.This is where I call on the support of the community,and support network.

I am not my medical conditions but in this environment it massively impacts me being me.Help me STAY TRUE.

In order to embrace independence it has been recommended that I require-

A new wheelchair(that can recline to a lying position to make me safe during seizures)

An all-terrain scooter.

Ramp access to the front door and back doors of the property.

Ramp access to get into the gate via the backyard.

A gate suitable for a wheelchair and that I can open.

A kitchen work surface or workstation that is lower in order for me to access it sitting in my wheelchair.

Handrails.

Bathroom mobility aids.

Physio/Fitness equipment.

There is more but you get the picture.

I do not have the means to buy any of the equipment I need.

However,

I have been facing this challenge head on.

This is a way of me taking control of my life.

I will continue to STAY TRUE because that is where strength lies.

About fundraiser

Fiona Purdon
Organiser

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