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£21,395raised of £70,000 target by 1164 supporters

Weʼre raising £70,000 to Help fund life-saving Proton Beam Therapy for our Daughter

Location
Rochdale, UK
Time left
26 days to go

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Story

We need as much help as we can get to fund life-saving Proton Beam Therapy for our Daughter Bodie. You can read Bodie’s story below:

A few days after Christmas 2016, Bodie was diagnosed with a brain tumour at the age of 10 months after 6 trips to our local A&E department and GP within a 4 week period. Bodie started with symptoms of sickness and constant tiredness which rapidly progressed into her losing the ability to crawl, sit up or even support her own head. The 6th time we arrived at our local A&E department a locum doctor checked the reflexes in her legs and suggested we get an ultrasound of her brain. This revealed ‘an abnormality’ and we were transferred by ambulance to Royal Manchester Children’s Hospital, who then rushed her for an MRI scan and told us the heart-breaking news the next morning that she had a brain tumour big enough to occupy one fifth of her skull.

Bodie’s first surgery was on New Year’s Eve to relieve pressure in her skull and 4 days later she had further brain surgery to remove as much of the tumour as possible. Sadly after 9 hours the Neurosurgeons could only manage to safely remove approximately half of the tumour. Two weeks after the surgery we were given Bodie’s official Cancer diagnosis, she has a Grade 3 Anaplastic Posterior Fossa Ependymoma. Bodie has endured 12 months of Chemotherapy which has worked far better than her Consultant had previously thought it would, she has also had 2 further surgeries in February 2018. The small remainder of the tumour is inoperable as it is in her brain stem.

Bodie is now 2 years old and for the past 2 months we were on track for Proton Beam Therapy which we were confident would be funded by the NHS. However her most recent MRI scan has shown a previously unnoticed mass within her brain stem, this new discovery is part of the original tumour and not new growth and means her tumour now exceeds the size requirements for NHS funding by a few millimetres. We are now faced with the agonising choice of having to self fund life-saving Proton Beam Therapy not currently available in the UK, or give her conventional Photon Radiotherapy which we believe would cause more long term damage to Bodie as it also hits healthy brain tissue, this can be avoided with targeted Proton Beam Therapy.

Thank you so much for taking the time to read Bodie’s story, if you can help us in any way it would give Bodie a better chance at beating her Cancer and living a full life.

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Updates

7

  • Lauren Thornton3 days ago
    Lauren Thornton

    Lauren Thornton

    3 days ago
    Update from the Page owner

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  • Lauren Thornton14 days ago
    Lauren Thornton

    Lauren Thornton

    14 days ago

    We have had some fantastic news from the Proton Centre in Essen, Germany. They have said yes to treating Bodie and have been given an estimated cost of €61,400 for Proton Beam Therapy and can start her treatment plan as soon as we have made payment!

    Share this update to help us raise more

  • Lauren Thornton17 days ago
    Lauren Thornton

    Lauren Thornton

    17 days ago
    Update from the Page owner

    Share this update to help us raise more

2 months ago

Lauren Thornton started crowdfunding

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Page last updated on: 4/23/2018 7:43 PM

Supporters

1164

  • Hayley Broughton

    Hayley Broughton

    Apr 23, 2018

    From Rare Ink xxx

    £75.00

  • Vincent Montague

    Vincent Montague

    Apr 22, 2018

    Good luck with the treatments

    £50.00

  • Amanda Constable

    Amanda Constable

    Apr 22, 2018

    God Bless You and your family. Thoughts and prayers are with you xx

  • Amanda  Burley

    Amanda Burley

    Apr 22, 2018

    Met Diana in Krakow and had no idea hat you were going through as a family. My wish for Bodie is that she’ll be well and happy. Good luck with the treatment. X

  • Faye Williams

    Faye Williams

    Apr 22, 2018

    I know it’s not a lot but I hope it helps

    £5.00

  • Lauren Little.

    Lauren Little.

    Apr 21, 2018

    What a beautiful little girl 😍 Wishing your amazing family all the luck in the world xxx

    £10.00

  • Nicola Woodhams

    Nicola Woodhams

    Apr 21, 2018

    Good luck Darren and the team on the sponsorsed pennine walk👍👍 Don’t forger the plasters 🤣 Steve, Nic & Izzy

    £50.00

About the fundraiser
Lauren Thornton

Lauren Thornton

Rochdale, UK

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