My 6 year old nephew Frankie has recently been diagnosed with a rare brain disease called Adrenoleukodystrophy. We had a meeting with a neurologist on Monday 4th March and found out Frankie's condition is extremely aggressive, he is deteriorating at a much faster rate than anyone would like and they are unable to do anything to help him. We were told Frankie has 2 years left with us, maybe less!! As you can imagine, my sister Demi and all the rest of the family are heartbroken!!! The only thing we can do now is make the rest of Frankie's life as happy and as comfortable as possible. I am asking that you please donate towards helping Demi, Frankie, Lilly & Darren's lives a little more comfortable in the next couple of weeks, months and hopefully years. They want to make as many precious memories as they possibly can with Frankie and the money may help towards this.
Thank you xxx