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Rachel Rimmer raised £245 from 15 supporters
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Closed 24/05/2019
Weʼve raised £245 to help patients, families and carers in the UK affected by Autoinflammatory Conditions by Zip - Wiring in North Wales!
- Funded on Friday, 24th May 2019
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Story
RACC-UK is a patient-led non-profit organisation that offers a lifeline to UK patients, parents and carers who are affected by a range of Autoinflammatory conditions. Our organisation provides emotional and practical advice for patients and their loved ones. In addition, RACC-UK is a member of the European Reference Network on Rare Primary Immunodeficiency, Autoinflammatory and Autoimmune diseases as well registered as being a stakeholder for the clinical reference groups relevant to Autoinflammatory conditions.
Background
Patients in the UK with Autoinflammatory conditions have often endured a long delay to diagnosis which impacts on long-term health and quality of life. Autoinflammatory conditions are rare genetic diseases which often leave patients feeling vulnerable and isolated with little support. The barriers to genetic testing, diagnosis and post diagnosis fail to provide access to wider specialist support, due to a lack of understanding of Autoinflammatory conditions.
https://www.youtube.com/watch?v=s3HpJWPOfXg&feature=youtu.be&fbclid=IwAR3uezlR-1jmzEzfSoBY17PqOsm17DJURy1t6qrBSYXEuyczc5Q5E1T4qFo
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Supporters
15
Iestyn Tyne
May 7, 2019
Lovely to see you yesterday :)
£30.00
Bekki
May 7, 2019
Well done Rachel x
Donna Allwood
May 5, 2019
£10.00
Anonymous
May 4, 2019
Anonymous
May 4, 2019
Foxinmad
May 4, 2019
Try and enjoy yourself Rachel
£30.00
Anonymous
May 4, 2019
Much respect to you little lady!!
£10.00
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About CrowdfundingAbout the fundraiser
Rachel Rimmer
I'm a patient with an Autoinflammatory condition called Mevalonate Kinase Deficiency. I'm also the founder and chair of a UK patient organisation (Rare Autoinflammatory Conditions Community - UK). I'm raising money for RACC - UK so that we can continue our work.