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Rachel Rimmer raised £245 from 15 supporters

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Closed 24/05/2019

0%
£245
raised of £2,000 target by 15 supporters

    Weʼve raised £245 to help patients, families and carers in the UK affected by Autoinflammatory Conditions by Zip - Wiring in North Wales!

    Oxford
    Funded on Friday, 24th May 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    RACC-UK is a patient-led non-profit organisation that offers a lifeline to UK patients, parents and carers who are affected by a range of Autoinflammatory conditions. Our organisation provides emotional and practical advice for patients and their loved ones. In addition, RACC-UK is a member of the European Reference Network on Rare Primary Immunodeficiency, Autoinflammatory and Autoimmune diseases as well registered as being a stakeholder for the clinical reference groups relevant to Autoinflammatory conditions.

    Background

    Patients in the UK with Autoinflammatory conditions have often endured a long delay to diagnosis which impacts on long-term health and quality of life. Autoinflammatory conditions are rare genetic diseases which often leave patients feeling vulnerable and isolated with little support. The barriers to genetic testing, diagnosis and post diagnosis fail to provide access to wider specialist support, due to a lack of understanding of Autoinflammatory conditions.

    https://www.youtube.com/watch?v=s3HpJWPOfXg&feature=youtu.be&fbclid=IwAR3uezlR-1jmzEzfSoBY17PqOsm17DJURy1t6qrBSYXEuyczc5Q5E1T4qFo

    Updates

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    Rachel Rimmer

    Updates appear here

      9 months ago

      Rachel Rimmer started crowdfunding

      Leave a message of support

      Page last updated on: 5/7/2019 18.15

      Supporters

      15

      • Iestyn Tyne

        Iestyn Tyne

        May 7, 2019

        Lovely to see you yesterday :)

        £30.00

      • Bekki

        Bekki

        May 7, 2019

        Well done Rachel x

      • Donna Allwood

        Donna Allwood

        May 5, 2019

        £10.00

      • Anonymous

        Anonymous

        May 4, 2019

      • Anonymous

        Anonymous

        May 4, 2019

      • Foxinmad

        Foxinmad

        May 4, 2019

        Try and enjoy yourself Rachel

        £30.00

      • Anonymous

        Anonymous

        May 4, 2019

        Much respect to you little lady!!

        £10.00

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      About Crowdfunding
      About the fundraiser
      Rachel Rimmer

      Rachel Rimmer

      Oxford

      I'm a patient with an Autoinflammatory condition called Mevalonate Kinase Deficiency. I'm also the founder and chair of a UK patient organisation (Rare Autoinflammatory Conditions Community - UK). I'm raising money for RACC - UK so that we can continue our work.

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