I've raised £2000 to help patients, families and carers in the UK affected by Autoinflammatory Conditions by Zip - Wiring in North Wales!

Organised by Rachel Rimmer
Donations cannot currently be made to this page
Oxford ·Health and medical

Story

RACC-UK is a patient-led non-profit organisation that offers a lifeline to UK patients, parents and carers who are affected by a range of Autoinflammatory conditions. Our organisation provides emotional and practical advice for patients and their loved ones. In addition, RACC-UK is a member of the European Reference Network on Rare Primary Immunodeficiency, Autoinflammatory and Autoimmune diseases as well registered as being a stakeholder for the clinical reference groups relevant to Autoinflammatory conditions.

Background

Patients in the UK with Autoinflammatory conditions have often endured a long delay to diagnosis which impacts on long-term health and quality of life. Autoinflammatory conditions are rare genetic diseases which often leave patients feeling vulnerable and isolated with little support. The barriers to genetic testing, diagnosis and post diagnosis fail to provide access to wider specialist support, due to a lack of understanding of Autoinflammatory conditions.

https://www.youtube.com/watch?v=s3HpJWPOfXg&feature=youtu.be&fbclid=IwAR3uezlR-1jmzEzfSoBY17PqOsm17DJURy1t6qrBSYXEuyczc5Q5E1T4qFo

About fundraiser

Rachel Rimmer
Organiser

Donation summary

Total
£245.00