Firstly, thank you SO MUCH for even clicking on this. Please do not feel you have to donate, or share, but anything is going to help. It’s getting desperate now.

Right, here goes... We need your help. As our friends & family know, Leigh and I are planning on getting married this year. Due to unforeseen circumstances we have lost our venue (that was free). We have little money for a new one and little energy to spend stressing about it all. Let me give you a bit of a back story:

Leigh and I are both chronically ill. Leigh has many disabilities/illnesses (mainly EDS) that have made her very sick indeed. All of which are incurable. In Leigh’s case, it is life-limiting. Leigh has multiple organ failure. She is TPN dependant which means she has nurses come in twice a day to connect/disconnect her feed up to her hickman line. The line goes through her chest into a vein in her heart so the nutrition gets pumped round her body, missing out the whole digestive system.

Without this Leigh would, to put it quite simply, die. She cannot eat anything and anything she drinks does not get absorbed as she has a drainage tube in her tummy (a PEG) to drain out stomach contents. Even when she does drink water she feels sick.

Leigh also has district nurses come once a day to change the medicine in her syringe driver. This is a machine that slowly pushes the syringe - giving Leigh 24 hour anti-sickness through a butterfly needle in her leg. Unfortunately this is getting trickier and trickier as it is all scar tissue and hurts her so much. Even with this medicine she throws up daily.

Leigh’s joints are dislocating constantly, causing her agonising pain. She is wheelchair bound and uses a hoist system to get out of bed into her powerchair or her specialised lounge chair. We spend 90% of the time ill in bed though.

Leigh has been in and out of hospital for years. She is only getting sicker. We are waiting on more testing/results for other illnesses and the poor thing just seems to be collecting diagnoses 😔 in 2016 she spent nearly 10 months in hospital. She self catheterises. She gets infections constantly.

DESPITE ALL THIS AND MORE Leigh remains INCREDIBLY positive and all her nurses/doctors wonder how on earth she isn’t depressed! She is the light of my life.

I am also very poorly with multiple chronic illnesses, but am very lucky they are not life-limiting, just incurable. I am also mainly wheelchair dependent as I can only walk the smallest amount, and not at all without support. Like I said, we spend 90% of our time in bed.

It is TOP of our bucket lists to get married to eachother. We wanted to do this as soon as possible before Leigh deteriorates even more.

That should bring us up to speed... Sorry it’s so long! Even if you cannot donate, and you think you can help in any of the following ways, then please message Reign Bayes on fb.

We live in Eastleigh, Hampshire so anywhere near by.

What we need:

•Professional photographer*SORTED*

•Professional videographer*SORTED*

•Floristry*SORTED*

•Hair dressers for both brides and bridesmaids

•Make up artists for brides and bridesmaids

•Wedding rings*SORTED*

•Catering*SORTED*

•DJ/Live folk band*SORTED*

•Dresses for bridesmaids*SORTED*

•White table cloths with flowers embroidered (can be used)

•Flowery tea sets (as many as possible! can be used)

•Flowery teapots (as many as possible! can be used)

Thank you so much for even reading all this. PLEASE share!!

Love, Reign and Leigh Baylis to be x