24%
£36,539raised of £152,000 target by 728 supporters

Weʼre raising £152,000 to Help fund cancer treatment for our 8 year old daughter, Amelia. She has recently relapsed with Neuroendocrine carcinoma in her bones.

Location
Salisbury, United Kingdom
Time left
25 days to go

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Story

Our daughter, Amelia, was originally diagnosed with a Neuroendocrine carcinoma in her chest in November 2014, after a seizure. It had formed in her Thymus and was driving the overproduction of cortisol in her body.

Neuroendocrine carcinoma, is a rare tumor, but is most commonly found in adults over 40. We were told straight away that treatment options would be limited, due to Amelia being so young, she was 6 at diagnosis, and because it is, generally, a tricky tumor to treat.

She was operated on and had the mass removed. Unfortunately there was local spread into the lymph glands, so in order to give chemotherapy the cortisol levels had to be controlled, so her adrenal glands were also removed in December. Chemotherapy started in January 2015. The first round made her really sick, and we stayed in Piam Brown (Southampton General Hospital) for a week, whilst she recovered. A month later the second treatment had to be abandoned as it had made her so sick it had caused her kidneys to salt waste. Fortunately our lovely Consultant Dr. Gary Nicolin had managed to find an alternative treatment by talking to his colleagues World wide. The 7 weeks of radiotherapy seemed to do the trick and this was followed up by 12 cycles of a drug called Temazolomide, as chemotherapy, that finished in May 2016. Amelia was declared NED (No Evidence of Disease) in June after a PET scan could not detect anything.

After a routine CT scan at the end of August 2016, Amelia started to complain of back pain. The pain was such that we visited our local hospital in Salisbury. After a few days she had an MRI scan. Chris and I received the devastating news a day later. The tumor has returned, this time in her bones. The scan showed both femurs, the pelvis and lower spine.

The only treatment available now is experimental drug trials, unfortunately these are not available on the NHS. Please help us give our daughter a chance.
£152,000 seems a lot, but will only cover 1 trial = 1 chance.

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Updates

4

  • Rebecca Russell

    Rebecca Russell

    a month ago

    Rebecca Russell

    We have hit a period of inertia! We are waiting for the results of the tissue tests for the.clinical trials at The Marsden. More crucially, as it represents Amelia's best opportunity, the funding request has been submitted for the Octreotide and Lutetium at University College London Hospital. We have our fingers firmly crossed as we have been.warned that it could be turned down. I would also like to recognise the amazing fundraising efforts by the whole community. It is very humbling to know we have such support as a Family. Thank you All. Xx

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  • Rebecca Russell

    Rebecca Russell

    a month ago

    Rebecca Russell

    After a pretty successful trip to University College London Hospital, we were brought back down to.earth as Amelia was very sick on the Friday night and consequently spent the weekend up in Salisbury Hospital. The.most likely culprit being one of the active isotopes she received during the scan in London! We will find out the results of our trip to London in the next few days..which means with the help.of our Consultants we will agree the treatment plan.

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  • Rebecca Russell

    Rebecca Russell

    2 months ago

    Rebecca Russell

    Thank you Everyone for your donation Big or Small it all helps to move towards that rather daunting target! This week we are visiting The Royal Marsden to discuss the options of Clinical trials. We are also in University College London Hospital towards the end of the week to.follow up the scans that Amelia has had in the last 2 weeks. This means that by the end of the week after there should be a solid treatment plan with a back-up in place!

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2 months ago

Rebecca Russell started crowdfunding

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Supporters

728

  • Kelly Wanser

    Kelly Wanser

    Dec 6, 2016

    Cheering for you.

    £30.00

  • Anonymous

    Anonymous

    Dec 5, 2016

    £50.00

  • Anonymous

    Anonymous

    Dec 5, 2016

    I pray to God Almighty for her speedy recovery #castles &cathedrals #srini

Rebecca Russell

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About the fundraiser
Rebecca Russell

Rebecca Russell

Salisbury, United Kingdom

Amelia, Chris and I live together in Salisbury.

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