Weʼve raised £360 to help funding towards finding a cure for Duchenne Muscular Dystrophy.
- Crawley, United Kingdom
- Children and youth
- Time left
- Funded on Tuesday, 3rd October 2017
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This is a photo of me with my handsome 5 year old son and my gorgeous 5 year old nephew. They are both typical kind hearted little boys with one huge difference. A few years ago my nephew was diagnosed with Duchenne Muscular Dystrophy, a devastatingly life limiting condition.
Last year I decided that it was my turn to do something that pushes me to my limits to raise money for Duchenne Muscular Dystrophy. I settled on the Tough Mudder Half after watching my brother and his friends complete the Full Tough Mudder with blood, sweat and tears. The bonus for me was when my cousins, Amy and Sarah, said they would join me in this crazy venture! As the date looms nearer we are frantically realising what we have let ourselves in for however, I keep reminding myself that's it's nothing in comparison to the things my nephew is going to have to face.
I appreciate that this is a lot to read but I have put together a short summary of what DMD is:
Duchenne Muscular Dystrophy is a condition that causes muscles to become weaker, as my nephew gets older he will find that walking, running, hopping, jumping and climbing will become more difficult. Over time his muscle cells will die and without a cure they are unable to repair themselves. One day it is likely that Tyler will lose the ability to walk independently.
This next part is quoted from the DMD web page:
Some children begin to use a powered wheelchair between the ages of 9 to 12 years. In the teenage years, the arms, chest and neck muscles can also be affected.
At present, there does not appear to be a cure for DMD but research is continuing to find a cure or treatment for children suffering with Duchenne or the milder form, Becker Muscular Dystrophy. It should be stressed that there is still much that can be done to keep children as mobile as possible for as long as possible. Regular exercise such as swimming, stretching and physiotherapy have been found to be beneficial, as has paying attention to a healthy diet.
Please, please sponsor us and keep your fingers crossed that one day there will be a cure for this horrid condition.
Love you muchly little T xxx
- 5 months ago
Rebecca Standing5 months ago
Well here's our update....WE DID IT!!!! It certainly wasn't easy and we've come away bruised and achy but we did it! We can't be more grateful for all of the donations and messages of support. We were a team of 7 people and between us we've raised over £1000 for Tyler's Tribe and the fight against Muscular Dystrophy...thank you to you all xx
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Rebecca Standing started crowdfunding
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Sep 30, 2017
Sep 27, 2017
Sep 26, 2017
Offline donations :)
Sep 26, 2017
Offline cake sale donations x
Sep 24, 2017
Well done Becks I am so proud of you!
Sep 24, 2017
Well done Becky-great achievement!! Love Chrissy, Will and Harris xxx
Sep 23, 2017
Good luck - just enjoy it and remember that every struggle is worth the money that you're raising. Go for it!!
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About the fundraiser
Crawley, United Kingdom
On Sunday the 24th September me and my cousins will be putting ourselves through our paces in the Tough Mudder Half a challenge that includes 5 miles of mud and 13 obstacles! We are expecting it to be every bit as tough as the challenges my nephew faces on a daily basis.
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