In 2014 Scott went into sudden cardiac arrest at our home at the young age of 26. We discovered he had and underlying heart condition called Arrythmogenic Right Ventricular Cardiomyopathy. A hospital stay of two weeks and an emergency ICD implanted, we went on to discover what life is like living with an inherited heart condition.

5 years later, April 2019, we landed another week hospital stay after a 3 day Ventricular Tachycardia storm, with 3 ICD shocks (in front of our little girls) and 18 episodes of ATP, we soon learned that Scotts condition had severely progressed.

That same year he went on to have a heart procedure called an endo-epicardial ablation to try and help the electrical issues in his heart. This then landed us back in the hospital where Scott had two massive pulmonary embolisms and I almost lost him again. Blood thinners, meds, thrombolysing etc and he is still here to live life with us!

He has been told to totally de-train and is allowed gentle walks and gentle yoga. Exercise was a massive part of who he was and he identified with a man who is considered to be incredibly fit and in top health. To be in a place at 31 years old and told you can’t physically do any of the things that you cherish if you wish to remain alive and watch your children grow is a very sad thing to hear. BUT he has done so and is doing so with such grace.

Scott is currently stable, he has not had a shock in 18 months, but continues to have hundreds of arrythmias every month. His condition is progressive and we just need to enjoy the good days!

‘Arrhythmogenic right ventricular dysplasia (ARVD) is a rare type of cardiomyopathy. It occurs if the muscle tissue in the right ventricle dies and is replaced with fatty scar tissue. This disrupts the heart's electrical signals and causes arrhythmias. Symptoms include palpitations and fainting after physical activity.

Please join us to walk for CRY and raise awareness of these conditions!