Weʼve raised £450 to help raise funds for Roan's Bath & Wiltshire Schools Sports Trust. And also Raife Wilson (Raising For Raife).
- Melksham, United Kingdom
- Disability support
- Time left
- Funded on Sunday, 1st October 2017
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Hi! My name is Roan Holloway and I am 9 years old and from Melksham. I have recently gained a squad place for Bath & Wiltshire Boys (BWB) under 10's football team.
As part of the schools trust, we are taught 4 core values. Responsibility, compassion, curiosity & resilience. For the season ahead, we are encouraged to think of and carry out a task in which we can raise money for the trust. This is so we can better understand the value of money and that we have to work hard for things.
I have decided that I would like to do a 30 mile bike ride to Pewsey and back. However, I have also decided that I would not only just like to raise money for the School Sports Trust (of which I have to raise around £100). I would also like to raise money for a young boy from Melksham, named Raife Wilson. I would like to help Raife because he hasn't got the opportunities that I have been lucky to have, to play sport because of his disability. And so I would like to help him have an operation that will make things easier for him as he gets older.
Below is Raife's story:
Immediately after birth, we knew that something wasn't quite right. Raife took a while to breathe on his own, his skin was blotchy and red/purple in colour.
After investigations post birth, we found that Raife only had platelets of 8! This meant our beautiful little man was whisked away to intensive care needing special care and transfusions. An MRI scan determined a parents worst nightmare- he had lost the majority of his right temporal lobe due to a significant bleed to the brain as a result of his lack of platelets. Even worse, we then found out that the bleed was due to a rare disorder that we as parents have called NAIT (neonatal alloimmune thrombocytopenia) whilst in utero, my body was attacking his platelets a very rare and dangerous blood disorder.
We had gone from being elated, cuddling our new bundle of joy, to our whole world being torn apart. The consultants were confused, it was so rare that nobody knew what was happening and what do do. Our hearts were filled with sadness and uncertainty.
Our strong little man pulled through, and has continued to make us proud everyday. Despite his injuries causing cerebral palsy, he has learnt to walk before the age of 2. He is the happiest little man and makes us laugh daily! His determination is admirable.
Now it's time for us to make life easier for Raife. . . . .
Selective dorsal rhizotomy (SDR) is an operation used to improve spasticity (muscle stiffness) in cerebral palsy. Cerebral palsy occurs when a child sustains a brain injury early in life. Although the brain injury is static, the difficulties it causes change continuously as he grows. Spasticity causes pain, shortening of muscles and tendons, joint contractures and bone deformities.
Nerve fibres running from the muscles back to the spinal cord play a major role in maintaining muscle stiffness. SDR, by dividing some of these fibres, is effective at significantly reducing stiffness and spasticity.
THIS OPERATION WOULD GIVE RAIFE THE CHANCE TO LEAD AN INDEPENDENT LIFE- STANDING TALL, PLAYING SPORTS AND RUNNING AROUND WITH HIS FRIENDS.
Thank you so much for your time to read about Raifes campaign. Any contributions as small as they may be would be so greatly recieved. We have a long way to go to get to our £45,000 target. Watch this space for lots of events to come!
- 7 months ago
Barry Holloway7 months ago
This is Raife. Hopefully we can raise even a small amount towards his operation.
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Barry Holloway started crowdfunding
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Sep 25, 2017
Go on Ro! Inspiring work from the Holloways as always.
Sep 25, 2017
Well done ro xx
Aug 5, 2017
What a lovely and thoughtful thing to do Roan. Good luck I'm sure your smash It. Have fun x
Aug 5, 2017
Good Luck Rowan and well done what an amazing thing to do xx
Aug 5, 2017
Good luck Roan, your doing a wonderful thing.
Aug 5, 2017
Well done Roan
Aug 4, 2017
Good luck Roan! Don't do a chilli shot in Devizes like me ur da n Sean did!!! X
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About the fundraiser
Melksham, United Kingdom
I'm Roan's dad and I'll be assisting Roan with his ride. I think it's important that Roan understands how lucky he is and we have both sat down and discussed Raife's position. Roan agrees that this is a great cause to help someone in a less fortunate position than himself.
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