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Rob Brookfield raised £215 from 14 supporters.

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Closed 18/10/2017

71%
£215raised of £300 target by 14 supporters

    Weʼve raised £215 to help get Olivia some new specialist equipment including a wheel chair, walker, and potentially a wet room installed at her home.

    Location
    Sheffield, United Kingdom
    Time left
    Funded on Wednesday, 18th October 2017

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    Story

    So who is Olivia, Olivia is the daugher of russ and michelle close friends to myself and my wife Brooke. Brooke works with michelle at school.

    Olivia was born on the 21st February 2001.

    A healthy baby, weighing 8lb 2oz - hitting all the milestones expected with walking and talking etc.

    At 3 years old, she started wearing glasses and was referred to the Sheffield Children's Hospital for regular check ups.

    In late 2008, Olivia's parents noticed that Olivia was starting to suffer further loss of vision but assumed she may just need her prescription adjusting. However, during a routine appointment with her consultant, it was decided further tests were needed.

    January 9th 2009 is a date that will haunt the family forever!

    Olivia's consultant confirmed the devastating news that Olivia had a condition called Juvenile Batten Disease.

    Juvenile Batten Disease is currently estimated to affect between 30-40 children and young people in the UK.

    Progression of the disease differs from child to child but almost always follows the same pattern:

    Firstly, loss of vision between ages 4-7, progressing until the child is completely blind, difficulties with concentration, short term memory and learning. From around 10 years onward, the next stage of the disease presents as epileptic seizures. During the teenage years mobility becomes more difficult and the onset of childhood dementia causes increased learning difficulties, confusion and anxiety.

    Sadly, there is no current cure for the disease and the life expectancy of a child / young adult with the disease is 15 - 35.

    Olivia is now 16, completely blind, on medication to control her seizures and starting to lose her mobility.

    Despite this, Olivia loves dancing, is a huge Harry Potter fan and loves listening to music on her iPod, especially Westlife!

    Updates

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    Rob Brookfield

    Updates appear here

      6 months ago

      Rob Brookfield started crowdfunding

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      Supporters

      14

      • Julian

        Julian

        Oct 8, 2017

        Go Rob.

        £30.00

      • Liam Marley

        Liam Marley

        Oct 2, 2017

        Nice one big dog. Good luck with the run.

        £20.00

      • Andrew Brookfield

        Andrew Brookfield

        Oct 2, 2017

        Good luck bruv!

        £50.00

      • Jordan French

        Jordan French

        Oct 1, 2017

        Your a bae for doing this❤️

        £5.00

      • Mark Plumtree

        Mark Plumtree

        Oct 1, 2017

        Nice one pal

        £20.00

      • Garry Shaw

        Garry Shaw

        Oct 1, 2017

        All the best for Sunday Robert

        £10.00

      • RM LAW

        RM LAW

        Sep 25, 2017

        Good luck ba! Great cause

        £10.00

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      About Crowdfunding
      About the fundraiser
      Rob Brookfield

      Rob Brookfield

      Sheffield, United Kingdom

      I'm running the Yorkshire marathon and trying to help towards some amazing things for such a amazing young girl. Olivia is the daughter of close friends to me and Brooke. Also I'd love to help raise as much as I can to help Olivia out.

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