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Robert Schofield raised £560 from 13 supporters
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Closed 27/07/2023
Iʼve raised £560 to Parathyroid UK is a small charity for people living with rare and hidden parathyroid disorders. It is a patient organisation only in the UK.
- Funded on Thursday, 27th July 2023
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Story
Parathyroid UK is the only patient organisation in the UK and Ireland which supports and campaigns for people with parathyroid disorders. These cause life threatening conditions that can affect all ages from newborns to the elderly. Raising funds for a small charity of a rare condition is difficult but with your kind support we can continue to make a difference in the lives of everyone living with these distressing conditions.
I am taking part in the 10k tough mudder on the 15th of July 2023 in Manchester and i would like to raise funds and make people aware of this rare, life impacting, life changing condition.
This condition is that rare that there is only a hand full of medical Professors that specialize in this condition. Normal Doctors and Endocrinologist have trouble understanding this rare condition and can not change any medication without the Professors say so.
My partner has Hypoparathyroidism, Hypothyroid and Hypocalcemia, in the past 7 year since we had our son , its had a big impact on her quality of life,.
Her calcium levels are not stable and she has to have repeated blood tests every two week to monitor her levels and to make changes in her long life medication.
Listed below are the symptoms she has on a daily bases, due her uncontrollable Calcium levels
Brittle hypoparathyroidism where levels remain constantly unstable. Symptoms may develop over time if ignored or unrecognised, or they may come on rapidly suddenly requiring urgent action to avoid a crisis.
Warning signs may be a drop in temperature, sensitivity to sound, shakiness, irritability, anxiety, diarrhea and gradually worsening muscle spasms.
Early symptoms of tetany may include:
Tingling or numbness in the hands and/or feet
Tingling or numbness in the face especially around the mouth
Irritability
Brain fog
Tiredness
Headache
Diarrhea
Twitching or trembly muscles
Sudden temperature drop
If not treated , more severe symptoms may develop and can include:
Increasing brain fog, feeling ‘out of it
Worsening tetany, feeling very trembly and vibrating inside (not visible)
Hard to function or move around
Carpopedal spasm (painful muscle spasms or cramps of the hands and feet)
Painful muscle spasms all over the body
High anxiety
Confusion
Severe muscle cramps
Seizures (this is rare)
Other symptoms may develop over time
Memory loss
Depression
Dry skin and itching, dry hair
Cataracts and eye problems
Dental problems
Kidney stones
Kidney failure
HIGH CALCIUM (hypercalcaemia)
Vitamin D and calcium treatment requires regular blood testing as calcium levels can fluctuate in response to many factors and medication occasionally needs to be adjusted. This can also involve a certain amount of guesswork as well. So people with Hypoparathyroidism can sometimes develop high calcium levels and you should be aware of the symptoms to look out for.
Early warning signs can include:
Extreme tiredness (fatigue) and lethargy
Feeling weak
Not wanting to eat much (anorexia)
Constipation
Loss of concentration and interest in doing things
Mild confusion
If the hypercalcaemia is not treated then the symptoms become much worse and can include
Feeling and being sick
Drowsiness
Passing large amounts of urine
Feeling very thirsty
Dehydration
Confusion
Agitation
Muscle spasms, tremors.
Bone pain and weakness
Irregular heart beat
Difficulty thinking and speaking clearly
As you can see this condition is not a pleasant condition to have if unstable, i just want to make people aware of this condition and how much help support Parathyroid UK give, i know times are hard so please donate any spare money you have to this increadible casue.
Thank you for reading and i hope you can support me in this challenge.
Updates
1
2 years ago
Robert Schofield
2 years agoJust a little update, iv been training extra hard for this event💪 and now I'm upping the game as someone has said that if I can complete tough mudder in 2 hours or under, they will double what I raise, so the 2 hour challenge is on💪💪 watch this space
Share this update to help us raise more
Robert Schofield started crowdfunding
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Supporters
13
Carol
Jul 16, 2023
You SMASHED IT Rob…Well done and for a great cause!
£50.00
Gemma Smart
Jul 15, 2023
Well done to you all. Hope you had a great time doing it. X
£10.00
Anonymous
Jul 9, 2023
Parents
Jun 25, 2023
Great charity,go Rob you mud runner
£25.00
Anonymous
Jun 25, 2023
You can do this 💪
£20.00
Lisa's Parents
Jun 23, 2023
Very worthwhile charity and good luck Rob you mud runner
£25.00
Anonymous
Jun 23, 2023
£10.00
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