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Robert Schofield raised £560 from 13 supporters

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Closed 27/07/2023

0%
£560
raised of £500 target by 13 supporters

    Weʼve raised £560 to Parathyroid UK is a small charity for people living with rare and hidden parathyroid disorders. It is a patient organisation only in the UK.

    Funded on Thursday, 27th July 2023

    Don't have time to donate right now?

    Story

    Parathyroid UK is the only patient organisation in the UK and Ireland which supports and campaigns for people with parathyroid disorders. These cause life threatening conditions that can affect all ages from newborns to the elderly. Raising funds for a small charity of a rare condition is difficult but with your kind support we can continue to make a difference in the lives of everyone living with these distressing conditions.

    I am taking part in the 10k tough mudder on the 15th of July 2023 in Manchester and i would like to raise funds and make people aware of this rare, life impacting, life changing condition.

    This condition is that rare that there is only a hand full of medical Professors that specialize in this condition. Normal Doctors and Endocrinologist have trouble understanding this rare condition and can not change any medication without the Professors say so.

    My partner has Hypoparathyroidism, Hypothyroid and Hypocalcemia, in the past 7 year since we had our son , its had a big impact on her quality of life,.

    Her calcium levels are not stable and she has to have repeated blood tests every two week to monitor her levels and to make changes in her long life medication.

    Listed below are the symptoms she has on a daily bases, due her uncontrollable Calcium levels

    Brittle hypoparathyroidism where levels remain constantly unstable. Symptoms may develop over time if ignored or unrecognised, or they may come on rapidly suddenly requiring urgent action to avoid a crisis.

    Warning signs may be a drop in temperature, sensitivity to sound, shakiness, irritability, anxiety, diarrhea and gradually worsening muscle spasms.

    Early symptoms of tetany may include:

    Tingling or numbness in the hands and/or feet

    Tingling or numbness in the face especially around the mouth

    Irritability

    Brain fog

    Tiredness

    Headache

    Diarrhea

    Twitching or trembly muscles

    Sudden temperature drop

    If not treated , more severe symptoms may develop and can include:

    Increasing brain fog, feeling ‘out of it

    Worsening tetany, feeling very trembly and vibrating inside (not visible)

    Hard to function or move around

    Carpopedal spasm (painful muscle spasms or cramps of the hands and feet)

    Painful muscle spasms all over the body

    High anxiety

    Confusion

    Severe muscle cramps

    Seizures (this is rare)

    Other symptoms may develop over time

    Memory loss

    Depression

    Dry skin and itching, dry hair

    Cataracts and eye problems

    Dental problems

    Kidney stones

    Kidney failure

    HIGH CALCIUM (hypercalcaemia)

    Vitamin D and calcium treatment requires regular blood testing as calcium levels can fluctuate in response to many factors and medication occasionally needs to be adjusted. This can also involve a certain amount of guesswork as well. So people with Hypoparathyroidism can sometimes develop high calcium levels and you should be aware of the symptoms to look out for.

    Early warning signs can include:

    Extreme tiredness (fatigue) and lethargy

    Feeling weak

    Not wanting to eat much (anorexia)

    Constipation

    Loss of concentration and interest in doing things

    Mild confusion

    If the hypercalcaemia is not treated then the symptoms become much worse and can include

    Feeling and being sick

    Drowsiness

    Passing large amounts of urine

    Feeling very thirsty

    Dehydration

    Confusion

    Agitation

    Muscle spasms, tremors.

    Bone pain and weakness

    Irregular heart beat

    Difficulty thinking and speaking clearly

    As you can see this condition is not a pleasant condition to have if unstable, i just want to make people aware of this condition and how much help support Parathyroid UK give, i know times are hard so please donate any spare money you have to this increadible casue.

    Thank you for reading and i hope you can support me in this challenge.

    Updates

    1

    • Robert Schofield1 year ago
      Robert Schofield

      Robert Schofield

      1 year ago

      Just a little update, iv been training extra hard for this event💪 and now I'm upping the game as someone has said that if I can complete tough mudder in 2 hours or under, they will double what I raise, so the 2 hour challenge is on💪💪 watch this space

      Share this update to help us raise more

    1 year ago

    Robert Schofield started crowdfunding

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    Page last updated on: 7/16/2023 11.33

    Supporters

    13

    • Carol

      Carol

      Jul 16, 2023

      You SMASHED IT Rob…Well done and for a great cause!

      £50.00

    • Gemma Smart

      Gemma Smart

      Jul 15, 2023

      Well done to you all. Hope you had a great time doing it. X

      £10.00

    • Anonymous

      Anonymous

      Jul 9, 2023

    • Parents

      Parents

      Jun 25, 2023

      Great charity,go Rob you mud runner

      £25.00

    • Anonymous

      Anonymous

      Jun 25, 2023

      You can do this 💪

      £20.00

    • Lisa's Parents

      Lisa's Parents

      Jun 23, 2023

      Very worthwhile charity and good luck Rob you mud runner

      £25.00

    • Anonymous

      Anonymous

      Jun 23, 2023

      £10.00

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