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Rachel Fulker raised £2,270 from 72 supporters

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Closed 15/03/2018

0%
£2,270
raised of £1,500 target by 72 supporters

    Weʼve raised £2,270 to help me fund a life changing continuous blood glucose meter so that I can be a normal teenager and also improve my long term health.

    Saint Ives, Carbis Bay, United Kingdom
    Funded on Thursday, 15th March 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Hi, my name is Robin, I am 14 years old and I have Type 1 Diabetes. I have something called ‘poor hypo awareness’, this means that I rarely recognise the symptoms of an oncoming episode of hypo-glycaemia or ‘low blood sugars’. This essentially means that before I know what is happening or I am able do anything about it, I become unable to look after myself, often passing out, sometimes this can also lead to temporary loss of vision and speech. This can be very serious if I am not with someone who knows how to care for me, as in these situations I cannot look after myself. This can happen as often as several times a day, and the resulting recovery isn’t very nice either as I can be left feeling very confused, disorientated, weak and emotional.

    As you can imagine, this has a profound effect on my day-to-day life as I have very little freedom or independence. I always have to be with someone who knows how to look after me and is willing to be responsible for my welfare, with the obvious exception of my parents, this is a serious obligation and there is understandably not a long list of volunteers prepared to do this.

    I also have to attend lots of medical appointments which address my diabetes and other related conditions. This, combined with the frequent episodes of hypo-glycaemia and hyper-glycaemia, both of which can lead to a parent having to come to school to sort me out, means I miss a great deal of school. This is having a knock-on effect on my grades and is a disruption for my parents one of whom works shifts and the other is studying to become a teacher.

    I frequently feel resentful towards my condition, which I have had since I was 2 years old and I often feel like I am missing out on ‘life’.

    But, there is a device called the Dexcom G5 CGM (Continuous Glucose Monitor), that will allow me to have more freedom. It will let me go out with friends and will also mean that I can safely go to college, university, drive a car or even go travelling, none of which I could do without the device. The Continuous Glucose Monitor is a sensor attached to my body that transmits continuous blood glucose readings to my mobile phone. This has three life changing benefits:

    1. It allows me to know what my blood sugars are doing without the need for a painful finger prick test,

    2. It provides my phone with information which allows alarms to be set to inform me when my blood is rising or falling to dangerous levels, enabling me to take preventative action before problems arise, and

    3. It allows my parents to monitor my blood sugars from their mobile phones, providing them with the assurance that I am safe.

    However, Cornwall Primary Healthcare Trust are not currently funding this treatment, which is disappointing as other trusts are. At the moment I have a trial pack which was funded by a very generous friend of my family. It is very early days but so far I have been able to spend more time with my friends and have even been able to walk the dog by myself, something which I know doesn’t sound like a big step, but I have never been able to do these things before.

    Due to my Mum having to work around my condition and my Dad being a full time student and my having two younger brothers, they are struggling to find the money to fund these sensors by themselves. So, I thought that I would try to help.

    My parents have helped me to set up this Crowd Funding page to try and raise funds and awareness. The funds will hopefully fund my Dexcom G5 CGM until my family, medical team, youth worker and school can put together a business case to the local NHS Trust and, hopefully, convince them that this would improve so many areas of my life and well-being to justify their investing in it for me.

    If you are able to support me financially, thank you very much. If not, please share my page and support all of the people with Type 1 Diabetes, who might benefit from wider knowledge of their condition and the treatments available.

    Fanks

    Robin x

    Updates

    2

    • Rachel Fulker2 years ago
      Rachel Fulker

      Rachel Fulker

      2 years ago
      Update from the Page owner

      Thank you so much for everyone’s support so far. You have funded just over 7 months of sensors for me. That’s amazing! 👏🏻😘

      Share this update to help us raise more

    • Rachel Fulker2 years ago
      Rachel Fulker

      Rachel Fulker

      2 years ago

      A huge thumbs up to everyone who has helped us reach my target! We have been blown away by the support we have received. Here I am flashing said CGM in celebration! This bit of technology costs £71.25 per week. After we have paid Just Giving their fees, you guys have funded 5 months worth of CGM. Thank you! If anyone still would like to donate, then anything over our target will simply fund the CGM for longer. Please keep sharing her page as we are trying to raise awareness, not just funds. You guys rock!

      Update from the Page owner

      Share this update to help us raise more

    2 years ago

    Rachel Fulker started crowdfunding

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    Page last updated on: 2/24/2018 21.34

    Supporters

    72

    • Amanda Tamblin

      Amanda Tamblin

      Feb 24, 2018

      Robin you are the bravest young girl I've ever met....saw you guys on the news such a strong unit.Love you all. X

      £20.00

    • Jane & Chris Symons

      Jane & Chris Symons

      Feb 11, 2018

      Hope you reach your funding goal very soon. Good luck and best wishes.

      £20.00

    • Carenza Parker

      Carenza Parker

      Feb 10, 2018

      I so hope this helps you and you can enjoy more independence!

      £20.00

    • Anya

      Anya

      Feb 9, 2018

      Hey! This is Anya (from Beau's class) I saw your article in the paper and decided to help out! <3

      £30.00

    • philip dorren

      philip dorren

      Feb 8, 2018

      keep positive-life is going to get much better for you and we know that you will reach your potential as you are obviously a very bright girl with hopefully an even bigger support network now. Hil wsm

      £60.00

    • Anonymous

      Anonymous

      Feb 7, 2018

      Hi Robin, Keep well we’re all here to support you. Xx

      £100.00

    • Anonymous

      Anonymous

      Feb 3, 2018

      Good luck sweetheart. Our son also has t1. All you t1 warriors are heroes. x

      £10.00

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    About Crowdfunding
    About the fundraiser
    Rachel Fulker

    Rachel Fulker

    Saint Ives, Carbis Bay, United Kingdom

    I am a typical teenage girl. I love music, I play the piano and sing for the Cornwall Chamber choir. I have a good group of friends and I enjoy a giggle. I love animals, especially cats. My greatest wish is to live a normal life and be just like everyone else.

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