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£650raised of £1,000 target by 20 supporters

Weʼre raising £1,000 to start a fund to purchase a vibrating jacket to help Roman deal with cystic fibrosis

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

My grandson is almost 4 years old (19th November). At the age of around 1 month old he was diagnosed with one of the worse strengths of Cystic Fibrosis. This is a terminal disease that affects the lungs and pancreas, creating sticky mucus in the lungs and no enzymes in the pancreas.

In such a short space of time, Roman has been in and out of hospital, the most recent lasting almost a month. The specialist told his parents that they worry about his future because the lung disease has developed far more quickly than they would have expected for a boy of his age.

Roman already has a food tube, which he is fed through every night with special milk and soon will be back into hospital on a regular basis, so will need a permanent line inserting under his arm so that he doesn't have to be sedated every time he goes back in to have his antibiotics etc.

I am to raise as much money as possible to start a fund so that as he grows older, his parents will be able to purchase a vibrating jacket that can help with his daily physiotherapy. These jackets costs thousands of pounds and would never be available on the NHS.

Any donations will help towards achieving this goal.....and when Roman no longer needs it, at least we can donate it to another child with the same illness.

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Updates

1

  • Susan Bond14 days ago
    Susan Bond

    Susan Bond

    14 days ago
    Update from the Page owner

    Share this update to help us raise more

16 days ago

Susan Bond started crowdfunding

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Page last updated on: 8/3/2018 5:26 PM

Supporters

20

  • Janice Sadler

    Janice Sadler

    Aug 3, 2018

    Good on you Susan, hope your successful and get what you need x

    £20.00

  • Anonymous

    Anonymous

    Aug 2, 2018

  • Nellie Gratton

    Nellie Gratton

    Jul 31, 2018

    Good luck ❤️❤️

    £100.00

  • Hannah Bowles

    Hannah Bowles

    Jul 31, 2018

    Wishing you all the luck in the world Yas to you and your family. Roman is a strong and beautiful boy and has the best nanny in the world xxx

    £30.00

  • Jennifer Rae

    Jennifer Rae

    Jul 31, 2018

    £10.00

  • Karen Kelly

    Karen Kelly

    Jul 30, 2018

    Brave little boy 💕

    £10.00

  • Brian Sproston

    Brian Sproston

    Jul 30, 2018

    £25.00

Susan Bond

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Susan Bond

Susan Bond

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