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Sarah Keys raised £15,620 from 364 supporters

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Closed 27/07/2023

0%
£15,620
raised of £50,000 target by 364 supporters

    Weʼve raised £15,620 to help Ryley achieve his dream to walk

    Borehamwood
    Funded on Thursday, 27th July 2023

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    Story

    Ryley was born 11 weeks early and he was already fighting a battle. He was diagnosed at our first pregnancy scan as having pulmonary stenosis which is a congenital heart disease. We were petrified that he wouldn’t make it, little did we know this was only the beginning. He was born in a very poor state, in actual fact he was resuscitated and on the 3rd attempt he look his first breath. This was where his cerebral palsy journey started but at this point we had no idea about it or what that meant for him and us as a family.

    On his actual due date he had an operation inserting a balloon into his heart which would open up the valve to help blood pump round correctly helping the pulmonary stenosis. Then when he was nearly 1 we realised he was not hitting his milestones and after speaking to various professionals and having numerous tests including MRIs he was diagnosed with Spastic Diplegia Cerebral Palsy and periventricular Luekomalacia. We were told Ryley will never walk, talk, feed properly and have numerous other medical issues. We as parents would not accept him not being able to walk, like any parent you want to try the best for your child. So we looked into Ryley’s condition and what, if anything could be done. Ryley was unfortunately rejected by the NHS but after doing some research we found a surgeon in America that after reading Ryley's medical notes and X-rays thought he could help. So last September during lockdown we made the gut wrenching decision to leave our daughters here in the UK for a month with their grandparents to try and make a better life for Ryley & for them, so he could join in with them playing with the hope of him being able to one day walk. It was a tough month watching and praying we had made the right decision for him but after the Spinal Dorsal Rhizotomy operation and hamstring lengthening we instantly noticed a difference. He was like jelly where as he usually was ridiculously rigid which made everything a challenge. Now back home he has 3 private physio sessions a week which is needed to stop the muscles going tight again, he needs bespoke orthotic splints for his legs (new pair every year) and wears night splints. At the age of 5 he has defied the specialists by being able to do all the things they said he would never be able to do and now he is taking very important small steps which is unbelievable. Ryley will always have cerebral palsy but it will not define him 💙

    Thank you for taking the time to read Ryley’s story.

    Updates

    6

    • Sarah  Keys1 year ago
      Sarah  Keys

      Sarah Keys

      1 year ago

      Update from the Page owner

      Share this update to help us raise more

    • Sarah  Keys1 year ago
      Sarah  Keys

      Sarah Keys

      1 year ago

      Update from the Page owner

      Share this update to help us raise more

    • Sarah  Keys1 year ago
      Sarah  Keys

      Sarah Keys

      1 year ago

      Hello, Happy Easter! Just wanted to update you on how Ryley is doing as I haven’t updated recently. He recently attended a 5 day, 1 hour per day, therapy session with Smile Therapy/DMI. He worked extremely hard and it was great to see different techniques used with him. Unfortunately for us, Smile Therapy are based in Canada so our next fundraising task is to raise enough money for a 2 week intensive therapy trip to Calgary to try and help Ryley. He has been struggling a little lately with his walking and his right leg has become quite weak …

      Share this update to help us raise more

    2 years ago

    Sarah Keys started crowdfunding

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    Page last updated on: 5/6/2023 04.57

    Supporters

    364

    • Jon

      Jon

      May 6, 2023

      £100.00

    • Anonymous

      Anonymous

      May 6, 2023

    • Carrie & Greg

      Carrie & Greg

      Dec 23, 2022

      Keep up the good work :) x

      £5.00

    • Dee

      Dee

      Dec 7, 2022

      Can't wait to see you and your family at WHL, COYS!

      £50.00

    • Raj & Krups

      Raj & Krups

      Nov 29, 2022

      £250.00

    • Pete Haine

      Pete Haine

      Nov 7, 2022

      More proceeds from the Secret Spurs History Walk

      £130.00

    • Jodie

      Jodie

      Nov 2, 2022

      Keep going little one, you’ve got this 💪🏻💙

      £5.00

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    About the fundraiser
    Sarah  Keys

    Sarah Keys

    Borehamwood

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