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Karen Miller

Karen Miller is crowdfunding

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£5,060raised of £150,000 target by 127 supporters

Weʼre raising £150,000 to help pay for CAR T cell therapy for Alfie

Ely Cambridgeshire

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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Story

In October 2018 my grandson Alfie was rushed to hospital with a high temperature and sickness . We were told within hours that he possibly had leukemia. Our world fell apart ....he was 11 months old and seriously ill .... His parents Saffron and Ollie were devastated . Ollie had only just finished treatment himself for Hodgkins lymphoma so it seemed even more unbelievable that from a beautiful little family of 3 this could be happening to 2 of them .
So began tests to get a proper diagnosis. A few days later we were told it was leukemia but not the usual child hood type but one which usually effects the over 60s. This is a very aggressive form of leukemia which would entail 6 months in hospital. So began the worries.....Would he cope with the treatment ? Would it work ? What if it didn't? Sleepless nights , nightmares when we did sleep , the dread of waiting for results,the dread of being taken into a private room to be told bad news . Such stress .
Alfie had to have 4 rounds of chemotherapy, many weeks in a barrier room because of infections, endless blood tests ,platelet and blood transfusions , Hickman line dressing changes, ct scans ,x rays, bone marrow aspirations, steroids, anti biotics,oxygen and a stint in intensive care for help with his breathing .
During his final round we were dealt another blow . They had found a gene mutation called PTPN11. A 2 week anxious wait to see if it was in his DNA or in the leukemia cells started and we were told they would start to look for a stem cell match . Unfortunately there is no match at the present time so we are currently working with the Anthony Noland trust to recruit more donors .
There is also another treatment called CAR T cell therapy but this costs £150000 and this is what this plea is for .
Please can you help us raise this money to give Alfie a chance .He is 17 months old now and the light of our lives .
Thank you .
#hope4Alfie

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Updates

10

  • Karen Miller2 days ago
    Karen Miller

    Karen Miller

    2 days ago

    We are still waiting on the Bristol results.....Alfie is doing well at the moment and we have fingers crossed that this will continue. X

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  • Karen Miller9 days ago
    Karen Miller

    Karen Miller

    9 days ago

    I've watched war on blood and cried and cried. To think all of that has gone on inside Alfie's tiny little body breaks my heart . To hear the families saying the same things that we have and worrying about the same things has brought the last years emotions back . Life is cruel. X https://www.google.com/amp/s/www.whatsontv.co.uk/events/war-blood-bbc2-7-jul/%3famp

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  • Karen Miller10 days ago
    Karen Miller

    Karen Miller

    10 days ago

    On BBC 2 at 9 PM there is a programme called the war on blood which is about car t cell therapy. Please watch if you can . https://www.google.com/amp/s/www.whatsontv.co.uk/events/war-blood-bbc2-7-jul/%3famp

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2 months ago

Karen Miller started crowdfunding

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Page last updated on: 7/15/2019 16.47

Supporters

127

  • Lori Owen

    Lori Owen

    Jul 12, 2019

    Bethan Owen, Year 8

    £401.22

  • Sarah-Lou Robs

    Sarah-Lou Robs

    Jul 11, 2019

  • Neil Drewell

    Neil Drewell

    Jul 9, 2019

    £20.00

  • Elaine Howe

    Elaine Howe

    Jul 8, 2019

    Hope you can raise enough to get the help you need ❤️

    £20.00

  • Karen, Chris, Ella and Lauren Page

    Karen, Chris, Ella and Lauren Page

    Jul 6, 2019

    All our love

    £150.00

  • Donald Robertson

    Donald Robertson

    Jul 6, 2019

    We hope that this small donation can help young Alfie with his treatment. We wish him all the best. We are making this donation in memory of our friend Norman Duke. From Don, Susan and Janette.

  • Ana Brown

    Ana Brown

    Jul 4, 2019

    In memory of Norman Duke, one of my true friends who helped and gave me many advice during tough times. Also sending my best wishes to Alfie, hope he gets the treatment he needed. xx

    £30.00

Karen Miller

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About the fundraiser
Karen Miller

Karen Miller

Ely Cambridgeshire

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