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Karen Miller

Karen Miller is crowdfunding

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£6,007raised of £150,000 target by 130 supporters

Weʼre raising £150,000 to help pay for CAR T cell therapy for Alfie

Ely Cambridgeshire

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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Story

In October 2018 my grandson Alfie was rushed to hospital with a high temperature and sickness . We were told within hours that he possibly had leukemia. Our world fell apart ....he was 11 months old and seriously ill .... His parents Saffron and Ollie were devastated . Ollie had only just finished treatment himself for Hodgkins lymphoma so it seemed even more unbelievable that from a beautiful little family of 3 this could be happening to 2 of them .
So began tests to get a proper diagnosis. A few days later we were told it was leukemia but not the usual child hood type but one which usually effects the over 60s. This is a very aggressive form of leukemia which would entail 6 months in hospital. So began the worries.....Would he cope with the treatment ? Would it work ? What if it didn't? Sleepless nights , nightmares when we did sleep , the dread of waiting for results,the dread of being taken into a private room to be told bad news . Such stress .
Alfie had to have 4 rounds of chemotherapy, many weeks in a barrier room because of infections, endless blood tests ,platelet and blood transfusions , Hickman line dressing changes, ct scans ,x rays, bone marrow aspirations, steroids, anti biotics,oxygen and a stint in intensive care for help with his breathing .
During his final round we were dealt another blow . They had found a gene mutation called PTPN11. A 2 week anxious wait to see if it was in his DNA or in the leukemia cells started and we were told they would start to look for a stem cell match . Unfortunately there is no match at the present time so we are currently working with the Anthony Noland trust to recruit more donors .
There is also another treatment called CAR T cell therapy but this costs £150000 and this is what this plea is for .
Please can you help us raise this money to give Alfie a chance .He is 17 months old now and the light of our lives .
Thank you .
#hope4Alfie

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Updates

10

  • Karen Miller3 months ago
    Karen Miller

    Karen Miller

    3 months ago

    We are still waiting on the Bristol results.....Alfie is doing well at the moment and we have fingers crossed that this will continue. X

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  • Karen Miller4 months ago
    Karen Miller

    Karen Miller

    4 months ago

    I've watched war on blood and cried and cried. To think all of that has gone on inside Alfie's tiny little body breaks my heart . To hear the families saying the same things that we have and worrying about the same things has brought the last years emotions back . Life is cruel. X https://www.google.com/amp/s/www.whatsontv.co.uk/events/war-blood-bbc2-7-jul/%3famp

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  • Karen Miller4 months ago
    Karen Miller

    Karen Miller

    4 months ago

    On BBC 2 at 9 PM there is a programme called the war on blood which is about car t cell therapy. Please watch if you can . https://www.google.com/amp/s/www.whatsontv.co.uk/events/war-blood-bbc2-7-jul/%3famp

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5 months ago

Karen Miller started crowdfunding

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Page last updated on: 8/3/2019 08.41

Supporters

130

  • Anonymous

    Anonymous

    Aug 3, 2019

    £20.00

  • KGGS Year 8

    KGGS Year 8

    Jul 23, 2019

    Raised by Yr 8 Kesteven and Grantham Girls' School

    £716.24

  • Aarushi SIddhanti KGGS Year 8

    Aarushi SIddhanti KGGS Year 8

    Jul 19, 2019

    All the Best.

    £211.00

  • Lori Owen

    Lori Owen

    Jul 12, 2019

    Bethan Owen, Year 8

    £401.22

  • Sarah-Lou Robs

    Sarah-Lou Robs

    Jul 11, 2019

  • Neil Drewell

    Neil Drewell

    Jul 9, 2019

    £20.00

  • Elaine Howe

    Elaine Howe

    Jul 8, 2019

    Hope you can raise enough to get the help you need ❤️

    £20.00

Karen Miller

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About the fundraiser
Karen Miller

Karen Miller

Ely Cambridgeshire

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