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Karen Miller raised £6,427.46 from 143 supporters

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Closed 27/11/2021

0%
£6,427
raised of £150,000 target by 143 supporters

    Weʼve raised £6,427 to help pay for CAR T cell therapy for Alfie

    Ely Cambridgeshire
    Funded on Saturday, 27th November 2021

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    Story

    In October 2018 my grandson Alfie was rushed to hospital with a high temperature and sickness . We were told within hours that he possibly had leukemia. Our world fell apart ....he was 11 months old and seriously ill .... His parents Saffron and Ollie were devastated . Ollie had only just finished treatment himself for Hodgkins lymphoma so it seemed even more unbelievable that from a beautiful little family of 3 this could be happening to 2 of them .
    So began tests to get a proper diagnosis. A few days later we were told it was leukemia but not the usual child hood type but one which usually effects the over 60s. This is a very aggressive form of leukemia which would entail 6 months in hospital. So began the worries.....Would he cope with the treatment ? Would it work ? What if it didn't? Sleepless nights , nightmares when we did sleep , the dread of waiting for results,the dread of being taken into a private room to be told bad news . Such stress .
    Alfie had to have 4 rounds of chemotherapy, many weeks in a barrier room because of infections, endless blood tests ,platelet and blood transfusions , Hickman line dressing changes, ct scans ,x rays, bone marrow aspirations, steroids, anti biotics,oxygen and a stint in intensive care for help with his breathing .
    During his final round we were dealt another blow . They had found a gene mutation called PTPN11. A 2 week anxious wait to see if it was in his DNA or in the leukemia cells started and we were told they would start to look for a stem cell match . Unfortunately there is no match at the present time so we are currently working with the Anthony Noland trust to recruit more donors .
    There is also another treatment called CAR T cell therapy but this costs £150000 and this is what this plea is for .
    Please can you help us raise this money to give Alfie a chance .He is 17 months old now and the light of our lives .
    Thank you .
    #hope4Alfie

    Updates

    10

    • Karen Miller3 years ago
      Karen Miller

      Karen Miller

      3 years ago

      We are still waiting on the Bristol results.....Alfie is doing well at the moment and we have fingers crossed that this will continue. X

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    • Karen Miller3 years ago
      Karen Miller

      Karen Miller

      3 years ago

      I've watched war on blood and cried and cried. To think all of that has gone on inside Alfie's tiny little body breaks my heart . To hear the families saying the same things that we have and worrying about the same things has brought the last years emotions back . Life is cruel. X https://www.google.com/amp/s/www.whatsontv.co.uk/events/war-blood-bbc2-7-jul/%3famp

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    • Karen Miller3 years ago
      Karen Miller

      Karen Miller

      3 years ago

      On BBC 2 at 9 PM there is a programme called the war on blood which is about car t cell therapy. Please watch if you can . https://www.google.com/amp/s/www.whatsontv.co.uk/events/war-blood-bbc2-7-jul/%3famp

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    3 years ago

    Karen Miller started crowdfunding

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    Page last updated on: 2/19/2020 16.59

    Supporters

    143

    • Shaun Osborne

      Shaun Osborne

      Feb 19, 2020

      This is a small token from a stranger - my wishes and prayers go out to your family....

      £50.00

    • Anonymous

      Anonymous

      Nov 22, 2019

    • Chris Page

      Chris Page

      Nov 4, 2019

      For Alfie, our wedding gift to you both. Thank you for a lovely day. Love Karen, Chris, Ella and Lauren. xxxx

      £100.00

    • Anonymous

      Anonymous

      Nov 2, 2019

    • Anonymous

      Anonymous

      Nov 2, 2019

      Good luck with your fundraising for Alfie and in lieu of a wedding gift 💝

      £20.00

    • Anonymous

      Anonymous

      Nov 1, 2019

      A small gift to celebrate your Wedding and your strong family.

    • Jacqueline Shooter

      Jacqueline Shooter

      Nov 1, 2019

      A small gift to mark your marriage today Karen and Tim :-) Wishing you ALL the best for the future

      £15.00

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    Karen Miller

    Karen Miller

    Ely Cambridgeshire

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