Weʼre raising £10,000 to Ensure Jasmine gets the after care required to have the SDR operation
- Bury St Edmunds, United Kingdom
- Disability support
- Time left
- 42 days to go
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Jasmine was born alongside her twin sister prematurely. She suffered a bad brain heamorige. The first few months of her life she suffered terribly, she had severe fits and was taken to UCLH intensive care. She couldn't breath for herself and was undergoing scary and painful testing.
During the course of her stay she developed hydrocephalus, this basically meant that the blood had blocked her cerebral fluid from flowing normally and was causing her head to swell, adding more pressure to her already damaged brain. She had to undergo lumbar punctures every other day to relieve the pressure on her head.
On top of that she developed suspected meningitis and was put on heavy medication.
We were eventually told the devastating news that Jasmine had diaplegic spastic cerebral palsy. This would result in Jasmine never being able to walk and struggling daily with things most of us take for granted. We were told she would never feed, talk, sit crawl or smile.
It was devastating news, but we were so relieved that our special baby was ok that we took it in our stride.
Jasmine has since smiled, eaten normally (with help) and spoken non stop. When she turned 15 months she sat up and the day after her second birthday she managed her first crawl! She was defying all odds.
This leads is nicely into today. Jasmine is so strong and so determined, she is now desperate to walk, something she won't be able to do without an operation called selective dorsal rhysotomy. A procedure that identifies nerves causing the spasticity and cutting them.
She was meant to be having this done on the nhs but they have since cut the funding leaving us with the option of her not walking or raising £30,000.
She is perfect as she is, it's not us that wants this its Jasmine. Being unable to walk and play with her twin sister is a daily frustration for her. She is so strong and has done so well.. She just needs a bit of extra help to reach where she wants to be!
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Sally Morton3 months ago
We have managed to raise the funds to get the operation done! we are now trying our best to get the funds together for the after care she will require. She will need to have Physio a few times a week for the foreseeable future. This can cost in excess of £70per hour. Jasmine has her assessment at Bristol hospital on Friday the 13th January. I will make sure I update you with the result! keep your fingers and toes crossed for us.
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Feb 26, 2017
Hope all goes well and you reach your target
Feb 21, 2017
Good luck with the fundraising. I wish Jasmine all the best.
Feb 14, 2017
Hi Sally I just read your story in a magazine. As an identical twin I was moved to tears. Wishing you all love and luck and every success xx
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