Weʼve raised £0 to to help fund for a specialised carseat
- Closed on Monday, 3rd September 2018
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Our daughter freya was diagnosed with non ketotic hyperglycinemia when she was just over a year old its a metabolic brain disorder which is genetic, sadly both me and my partner have the bad gene. She is on regular medication to help with the disorder but unfortunately freya still has many difficulties including abnormal movements, behavioural problems and development delay, we have also bin told she won't live past teen years. She isn't mobile at all and requires help getting around wherever she goes. Please help us fund for a specialised carseat for her to make her feel more safe and secure whilst going out in the car. Also will help us to be able to get her in and out of the car without struggling as freyas 3 years old now shes getting bigger and heavier soon its going to be impossible thankyou so much
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