it is heartbreaking and frustrating, not knowing how much pain Samuel is in. He doesn't show it & has no communication except for eye pointing. This also causes problems trying to work out what Samuel wants to do, where he wants to go, whether his is hungry, thirst or in pain. Although I get more of my fair share of hugs, Samuel has never been able to say "I love you Mum". Most of the last 21 years has been pure guess work. At college, they have discovered a system that may finally give him a proper form of communication. It is called ‘Eye Gaze’. He has been having regular sessions with the system and he is doing amazingly well, already making decisions and choices independently! One day, he may actually be able to say (through the computer) "I love you Mum" as well as letting me know what he wants, if he is in pain or simply, what he wants to wear that day!

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