Elaina's story written by her Mummy-

"Elaina started having seizures at four months old and she was diagnosed as epileptic. Despite medications she continued to have seizures and they become longer and longer lasting 30 mins to 2 hours on a regular basis. No one could tell us why this was happening to our little girl. Elaina was developing normally but having huge seizures. Test were done and more and more medications were tried but before we could get a cause and stability, Elaina had a seizure that changed her forever. In August last year, three days after her second birthday, she had a seizure and a cardiac arrest for 8 minutes (the doctors don't know why).

She now has global brain damage as well as epilepsy which causes 25 seizures a day. We now know that the epilepsy has been caused by Dravet Syndrome . She cant talk her vision has been affected but no one can tell us how much, she cant sit, crawl, stand or walk. She is working hard with physios to learn to hold her head up and she is making progress with this but its hard work and she needs constant input and practise.

This is where you wonderful people come in, I am running the Worcester 10k on the 17th September, it may not seem like much of a challenge to some people but for me this is tough and if I am going to push myself to do this then what better way than running for Elaina and her lovely family.

I cant even imagine what this year has been like for Mandy and Jules and big sister Caitlin but if I can raise even enough for one physio session then this will help them as currently they are funding some of these sessions, let alone all the other equipment needed to help Elaina.

Please give what ever you can and give Elaina every chance to get better.

Thank you all

Sandy xxx