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Sarah Beall raised £10,722.38 from 335 supporters


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Closed 22/03/2019

raised of £50,000 target by 335 supporters

    Weʼve raised £10,722 to help fund major lifestyle changes, treatment and equipment for George to prolong his life living with SMA type 1

    Hoddesdon, Hertfordshire, United Kingdom
    Funded on Friday, 22nd March 2019

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    It was both Mark and Jayne’s dream to be parents, but this was a challenge for them as they were unable to conceive naturally. After many years, IVF/ICSI was the only option.

    Miracles do happen and George was born on the 2nd October 2017, Jayne, Mark, family and friends were over the moon on the arrival of a gorgeous, happy, smiley baby boy.

    George passed all his 6 weeks checks and Jayne and Mark were preparing for their first Christmas as a family. Sadly, at the beginning of December, George contracted a virus and was extremely poorly, he struggled to eat and was struggling to breathe, so, George was taken to A&E for routine tests and an IV course of antibiotics.

    It was during this time that consultants became concerned about George’s muscle strength, George was still struggling to swallow and drink which prompted consultants to test George for SMA Type 1.

    Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscular weakness and loss of movement due to muscle wasting (atrophy). This may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing.

    SMA Type 1 is the most severe form of SMA. Sadly, without intervention most children with SMA Type 1 rarely survive beyond two years of age.

    Spending Christmas and New Year in and out of hospital , Jayne and Mark waited some agonising two weeks for the test results. On the 4th January the results were in and Jayne and Mark received the devastating news that George had the genetic disease SMA Type 1.

    Left to digest this heart-breaking news over the weekend, they refused to accept this without a fight! George was special... another IVF miracle! Science created George and Jayne and Mark are determined that science will save him!

    Please help Jayne and Mark raise money to fund major lifestyle changes and the necessary treatment and equipment for George that will help prolong his life!



    • Sarah Beall2 years ago
      Sarah Beall

      Sarah Beall

      2 years ago

      Mummy and daddy have been busy raising awareness of SMA, they have been on the radio and held an event with 260 people! They are buying me a seat so that I can sit up, so proud of them xxxx

      Update from the Page owner

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    • Sarah Beall3 years ago
      Sarah Beall

      Sarah Beall

      3 years ago

      Share this update to help us raise more

    • Sarah Beall3 years ago
      Sarah Beall

      Sarah Beall

      3 years ago


      Update from the Page owner

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    3 years ago

    Sarah Beall started crowdfunding

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    Page last updated on: 2/28/2019 07.02



    • michaela baranowski

      michaela baranowski

      Feb 28, 2019


    • Anonymous


      Feb 15, 2019

    • Ann McGowan

      Ann McGowan

      Feb 6, 2019

      George is such a beautiful happy boy - always seems to be smiling xx


    • Marisa Pereira

      Marisa Pereira

      Feb 2, 2019


    • Peter Sandell

      Peter Sandell

      Jan 16, 2019

      Good luck with the fundraising; Jo told me all about it.


    • Ann McGowan

      Ann McGowan

      Jan 5, 2019

      For George!


    • Samuella Barber

      Samuella Barber

      Aug 14, 2018

      We love you George. From the jolly fisherman staff xxx


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    About Crowdfunding
    About the fundraiser
    Sarah Beall

    Sarah Beall

    Hoddesdon, Hertfordshire, United Kingdom

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