Please help my fundraising for vital treatment for Median arcuate ligament syndrome so I can eat food again, not be in constant stomach pain, and be well enough to graduate from my Masters degree.

I lost 9 and a half stone in four years, and have so far completed most of my Masters degree on a liquid diet, unable to eat food, with each inhaled breath causing severe pain in my upper left tummy. Additionally, due to damage to my celiac plexus nerves which (in-part) control gut motility, I am reliant on Peristeen trans-anal irrigation.

It took YEARS to get any doctors to believe my pain was real and I've been on a very long painful diagnostic journey. Currently really unwell and only managing about 1000 calories most days, I keep needing IV fluids due to fainting and autonomic problems,

When I had my mesenteric angiogram in December 2021 the Vascular Team said they didn't feel they needed to operate. It was over a two-year wait until February 2024 for a second opinion from a different Vascular Team, and I've recently been put on a year-long waiting list for MALS surgery.

I had a diagnostic celiac plexus nerve block in March 2023 which was a huge relief from the constant pain for 3 months until it wore off. There is one NHS Doctor in the UK can perform a more permanent celiac plexus nerve block in the North of England and I'm on a 45-month waiting list.

If I could raise approx £1,750 I could have nerve block privately in London SOON. This would hopefully mean I could eat some food again and help with my severe pain from the MALS.

PLEASE, PLEASE, PLEASE donate what you can to help me fund medical help ASAP. This cannot go on whilst I get sicker and sicker waiting for NHS help. I need to get better ASAP so I can finish my MSc as I want to do a PhD next and put my experiences to good use helping others with the Ehlers-Danlos syndromes.

ALSO SEE THIS BLOG POST I WROTE FOR MORE INFO ON MALS: https://www.sedsconnective.org/post/arfid-or-mals-it-s-not-all-in-your-head