On 25th April 2025 a childhood friend sadly lost her beautiful boy Reggie Glynn to a rare lifelong disease Sanfilippo Syndrome.

Sanfilippo Syndrome mostly affects the brain and is one of a group of conditions called "childhood dementia" there is NO CURE

Reggie was just 9 years old a little man who you only had to look at and he would make you smile.

His mum beck and his 2 siblings amelia and masons world have been ripped apart.

There son/brother there best friend gone by this horrible disease at such a young age.

Im raising as much as possible to help beck and her children through this hard time whilst funerals for children are free anything extra special the family will have to pay for

Reggie deserves the absolute best he fought until the very end like a warrior. 💙

🕊 Reggie Glynn 29.09.2015 - 25-04.2025🕊

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