Sarah is 30 years old in August. We are trying to raise funds for her to have a downstairs bedroom and bathroom. Since last September she has been in a hospital bed in the dining room, while this is great she is with the family, she has no private space and gets confused, often asking if she can go home? It would be wonderful to create her own bedroom.

Sarah has a very rare degenerative neurological condition called Kufs disease. It’s been two years since she was assessed as needing her own space and we finally have planning permission for her downstairs bedroom and bathroom extension, but we have not got the full funds to go ahead with the build. We have raised £60,000 towards it but the cost of the basic build is £100,000. If successful in raising funds, the build could start this year.