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Sarah Ruane raised £1,190 from 58 supporters.

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Closed 17/08/2018

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£1,190raised of £1,000 target by 58 supporters

    Weʼve raised £1,190 to raise funds for research into congenital myotonic dystrophy.

    Funded on Friday, 17th August 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    My son has myotonic muscular dystrophy. It is slowly killing him. There is no treatment and no cure. We need research into this utterly devastating condition so that we can find a cure. Most people have never heard of it. That needs to change.
    Josh needs saving. He needs to grow up and go to school, college, marry , get into trouble. His precious little hands need to hold a steering wheel one day. It will probably never happen. His reality is a wheelchair, loss of ability to eat,drink,speak and finally breathe. Its so unfair. What did he ever do to deserve it? What did any of the affected kids do?
    Nothing is the answer. Absolutely nothing!
    I wish so badly that i could change places with him. That he could have my years. But i cant. I can only fight on his behalf. That i can do. Ill do it for as long as it takes. Till this wicked and relentless disease is heard of by everyone. And a cure is discovered. For my beloved little son. For all the kids with congenital myotonic dystrophy. We will not be silent and accept it.
    Sarah and josh

    Updates

    5

    • Sarah Ruane3 months ago
      Sarah Ruane

      Sarah Ruane

      3 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Sarah Ruane4 months ago
      Sarah Ruane

      Sarah Ruane

      4 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Sarah Ruane4 months ago
      Sarah Ruane

      Sarah Ruane

      4 months ago
      Update from the Page owner

      Share this update to help us raise more

    4 months ago

    Sarah Ruane started crowdfunding

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    Page last updated on: 6/26/2018 2:42 PM

    Supporters

    58

    • Paul golliker

      Paul golliker

      Jun 26, 2018

      £10.00

    • Anonymous

      Anonymous

      May 17, 2018

    • Sally Stubbs

      Sally Stubbs

      May 16, 2018

      Oops I am late! Well done you are amazing. Need to catch up on your fb journey clips as had a hectic week. Hope this helps towards the amazing work you are doing to raise awareness x x

      £40.00

    • stewart whitten

      stewart whitten

      May 16, 2018

      a very good cause great job Sarah 👍🏼👍🏼👍🏼👊🏼

      £10.00

    • Karen Dart

      Karen Dart

      May 15, 2018

      Love to you and Josh, well done x

      £20.00

    • Christine Keyes

      Christine Keyes

      May 14, 2018

      £10.00

    • Shelley & Fraser

      Shelley & Fraser

      May 14, 2018

      My pleasure to get you to your target. Well done - in this together always! xxxx

      £30.00

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    About Crowdfunding
    About the fundraiser
    Sarah Ruane

    Sarah Ruane

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