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Sarah Stevenson raised £310 from 12 supporters

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Closed 08/10/2018

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£310raised of £1,000 target by 12 supporters

    Weʼve raised £310 to help families get together at annual conference whose children have a brain growth condition known as DYRK1A.

    Funded on Monday, 8th October 2018

    What is crowdfunding?

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    Story

    DYRK1A is a gene which is involved in brain growth. This rare syndrome has only been recognised in the last 9 years, and there are currently only 200 or so families across the world affected by it. Children with it typically have epilepsy, a small head, speech delay, short stature, autism, and cognitive impairment. My friend Janet Banks has a beautiful little boy who is affected by this condition. She is putting together a families meet up conference in London on 21st July, and amazingly has managed to get several families from Europe who are also affected, to attend, as well as 3 keynote genetics and therapists speakers. Together they will share their experiences of this rare condition, and the speakers will discuss the most up to date knowledge of this complex syndrome. We are hoping to raise this money to help fund the meet up conference costs. Thank you xx

    Updates

    1

    • Sarah Stevenson5 months ago
      Sarah Stevenson

      Sarah Stevenson

      5 months ago
      Update from the Page owner

      Share this update to help us raise more

    6 months ago

    Sarah Stevenson started crowdfunding

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    Page last updated on: 7/27/2018 2:23 PM

    Supporters

    12

    • Gemma Brady

      Gemma Brady

      Jul 20, 2018

      See you all tomorrow 😀

    • Eva

      Eva

      Jul 17, 2018

      See you soon

      £30.00

    • Anonymous

      Anonymous

      Jun 30, 2018

      £10.00

    • Anonymous

      Anonymous

      Jun 27, 2018

    • Joanne Probert

      Joanne Probert

      Jun 27, 2018

      Hope the meet up conference in July goes well x

      £20.00

    • Helen Mcwilliam

      Helen Mcwilliam

      Jun 27, 2018

      Hope you manage to raise the funds you need x

      £10.00

    • Dani Hall

      Dani Hall

      Jun 25, 2018

      It will be so brilliant to meet you all!

      £100.00

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    About Crowdfunding
    About the fundraiser
    Sarah Stevenson

    Sarah Stevenson

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