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£310raised of £1,000 target by 12 supporters

Weʼre raising £1,000 to help families get together at annual conference whose children have a brain growth condition known as DYRK1A.

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DYRK1A is a gene which is involved in brain growth. This rare syndrome has only been recognised in the last 9 years, and there are currently only 200 or so families across the world affected by it. Children with it typically have epilepsy, a small head, speech delay, short stature, autism, and cognitive impairment. My friend Janet Banks has a beautiful little boy who is affected by this condition. She is putting together a families meet up conference in London on 21st July, and amazingly has managed to get several families from Europe who are also affected, to attend, as well as 3 keynote genetics and therapists speakers. Together they will share their experiences of this rare condition, and the speakers will discuss the most up to date knowledge of this complex syndrome. We are hoping to raise this money to help fund the meet up conference costs. Thank you xx

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  • Sarah Stevenson19 days ago
    Sarah Stevenson

    Sarah Stevenson

    19 days ago
    Update from the Page owner

    Share this update to help us raise more

2 months ago

Sarah Stevenson started crowdfunding

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Page last updated on: 7/27/2018 2:23 PM



  • Gemma Brady

    Gemma Brady

    Jul 20, 2018

    See you all tomorrow 😀

  • Eva


    Jul 17, 2018

    See you soon


  • Anonymous


    Jun 30, 2018


  • Anonymous


    Jun 27, 2018

  • Joanne Probert

    Joanne Probert

    Jun 27, 2018

    Hope the meet up conference in July goes well x


  • Helen Mcwilliam

    Helen Mcwilliam

    Jun 27, 2018

    Hope you manage to raise the funds you need x


  • Dani Hall

    Dani Hall

    Jun 25, 2018

    It will be so brilliant to meet you all!


Sarah Stevenson

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