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Sarah Stevenson raised £310 from 12 supporters
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Closed 08/10/2018
Weʼve raised £310 to help families get together at annual conference whose children have a brain growth condition known as DYRK1A.
- Funded on Monday, 8th October 2018
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Story
DYRK1A is a gene which is involved in brain growth. This rare syndrome has only been recognised in the last 9 years, and there are currently only 200 or so families across the world affected by it. Children with it typically have epilepsy, a small head, speech delay, short stature, autism, and cognitive impairment. My friend Janet Banks has a beautiful little boy who is affected by this condition. She is putting together a families meet up conference in London on 21st July, and amazingly has managed to get several families from Europe who are also affected, to attend, as well as 3 keynote genetics and therapists speakers. Together they will share their experiences of this rare condition, and the speakers will discuss the most up to date knowledge of this complex syndrome. We are hoping to raise this money to help fund the meet up conference costs. Thank you xx
Updates
1
- 6 years ago
Sarah Stevenson
6 years agoShare this update to help us raise more
Sarah Stevenson started crowdfunding
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Supporters
12
Gemma Brady
Jul 20, 2018
See you all tomorrow 😀
Eva
Jul 17, 2018
See you soon
£30.00
Anonymous
Jun 30, 2018
£10.00
Anonymous
Jun 27, 2018
Joanne Probert
Jun 27, 2018
Hope the meet up conference in July goes well x
£20.00
Helen Mcwilliam
Jun 27, 2018
Hope you manage to raise the funds you need x
£10.00
Dani Hall
Jun 25, 2018
It will be so brilliant to meet you all!
£100.00
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