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Sarah Stiffin raised £1,052.2 from 51 supporters

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Closed 14/07/2019

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£1,052raised of £500 target by 51 supporters

    Weʼve raised £1,052 to raise funds for Stargardt's Connected, to promote awareness of and find a cure for Stargardt's Disease.

    Cheshunt
    Funded on Sunday, 14th July 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    I'm taking part in the London Marathon on 28th April. I'm raising awareness and money for Stargardt's Connected, which has been set up by Bhavna Tailor following her 11 year old son's diagnosis in 2015.

    Bhavna's son, Ethan, is in my daughter's class at school and I have been so inspired by how he has coped and also the commitment and resolve of Bhavna to promote awareness and support for the disease. As I type, Stargardt's Connected is in the process of becoming a registered charity.

    What is Stargardt's Disease?

    Stargardt's Disease causes a blurring of vision, especially the ability to see fine detail. It is extremely rare, affecting just 1 in 10,000 people. The condition makes reading challenging, as well as impairing everyday tasks such as studying, working, driving and crossing a road safely.

    There is currently no cure and because it is so rare, it's not known exactly how many people are affected or where they are. For this reason, Stargardt's Connected is raising money to undertake crucial research into this disease, to promote awareness. It is also hoped that a register can be set up so they know who is affected. Support networks have also been set up for people affected and their families.

    Updates

    1

    • Sarah Stiffin2 months ago
      Sarah Stiffin

      Sarah Stiffin

      2 months ago

      Wow, wow, wow! I can't believe you have helped me double my fundraising goal. We are now over £1000!! I can't tell you how much this means. It certainly makes the pain of the London Marathon so worthwhile LOL! Thank you so so much for all your generous support. This will help Bhavna and Stargardts Connected so much. xx

      Share this update to help us raise more

    4 months ago

    Sarah Stiffin started crowdfunding

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    Page last updated on: 5/10/2019 15.12

    Supporters

    51

    • Janet Maddison

      Janet Maddison

      May 10, 2019

      Good Luck Sarah. Happy to support the cause. Best wishes to Bhavna and the lovely Ethan.

    • Anonymous

      Anonymous

      May 8, 2019

    • Kinga

      Kinga

      May 8, 2019

      Lots of love to Ethan!

      £20.00

    • Anonymous

      Anonymous

      May 7, 2019

      A great cause Sarah well done ,, Bhavna you are amazing

    • Raj Patel

      Raj Patel

      May 7, 2019

      Congrats, a most worthy cause. Raj, Varsha & Nina

      £20.00

    • From Hemali and Pratik

      From Hemali and Pratik

      May 2, 2019

      Well done and raising money for such a great cause. Bhavna - you are doing a fantastic job xx

      £15.00

    • Anonymous

      Anonymous

      May 2, 2019

      Great causeWell doneGemma & Kelly

      £40.00

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    About Crowdfunding
    About the fundraiser
    Sarah Stiffin

    Sarah Stiffin

    Cheshunt

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