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Sarah Stiffin

Sarah Stiffin is crowdfunding

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£1,052raised of £500 target by 51 supporters

Weʼre raising £500 to raise funds for Stargardt's Connected, to promote awareness of and find a cure for Stargardt's Disease.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

I'm taking part in the London Marathon on 28th April. I'm raising awareness and money for Stargardt's Connected, which has been set up by Bhavna Tailor following her 11 year old son's diagnosis in 2015.

Bhavna's son, Ethan, is in my daughter's class at school and I have been so inspired by how he has coped and also the commitment and resolve of Bhavna to promote awareness and support for the disease. As I type, Stargardt's Connected is in the process of becoming a registered charity.

What is Stargardt's Disease?

Stargardt's Disease causes a blurring of vision, especially the ability to see fine detail. It is extremely rare, affecting just 1 in 10,000 people. The condition makes reading challenging, as well as impairing everyday tasks such as studying, working, driving and crossing a road safely.

There is currently no cure and because it is so rare, it's not known exactly how many people are affected or where they are. For this reason, Stargardt's Connected is raising money to undertake crucial research into this disease, to promote awareness. It is also hoped that a register can be set up so they know who is affected. Support networks have also been set up for people affected and their families.

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Updates

1

  • Sarah Stiffin12 days ago
    Sarah Stiffin

    Sarah Stiffin

    12 days ago

    Wow, wow, wow! I can't believe you have helped me double my fundraising goal. We are now over £1000!! I can't tell you how much this means. It certainly makes the pain of the London Marathon so worthwhile LOL! Thank you so so much for all your generous support. This will help Bhavna and Stargardts Connected so much. xx

    Share this update to help us raise more

2 months ago

Sarah Stiffin started crowdfunding

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Page last updated on: 5/10/2019 15.12

Supporters

51

  • Janet Maddison

    Janet Maddison

    May 10, 2019

    Good Luck Sarah. Happy to support the cause. Best wishes to Bhavna and the lovely Ethan.

  • Anonymous

    Anonymous

    May 8, 2019

  • Kinga

    Kinga

    May 8, 2019

    Lots of love to Ethan!

    £20.00

  • Anonymous

    Anonymous

    May 7, 2019

    A great cause Sarah well done ,, Bhavna you are amazing

  • Raj Patel

    Raj Patel

    May 7, 2019

    Congrats, a most worthy cause. Raj, Varsha & Nina

    £20.00

  • From Hemali and Pratik

    From Hemali and Pratik

    May 2, 2019

    Well done and raising money for such a great cause. Bhavna - you are doing a fantastic job xx

    £15.00

  • Anonymous

    Anonymous

    May 2, 2019

    Great causeWell doneGemma & Kelly

    £40.00

Sarah Stiffin

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Sarah Stiffin

Sarah Stiffin

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