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Jax Long

Jax Long is crowdfunding

100%
£85,265
raised of £85,000 target by 1433 supporters

Weʼre raising £85,000 to Help send Sarah to Germany for brain tumour cancer treatment.

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Story

Help us to get life-saving cancer treatment for our amazing friend Sarah Pugh.

In November 2020, Sarah was diagnosed with a life-threatening grade 4 glioblastoma, a highly aggressive form of brain cancer. Even after surgery, radiotherapy and chemotherapy the tumour is likely to grow within months. We hope to access more progressive techniques in Germany that may help prolong Sarah's life and give her a few more years with her son.

Sarah’s been one of Bristol's leading environmental and community organisers and teachers for over twenty years, designing and delivering hundreds of life-changing courses. She is one of the funniest and loveliest human beings you’ll ever meet - full of positive energy. Her inspiring, down to earth teaching has catalysed environmental action, community-building and positive culture change. With pioneering spirit, she initiated the Bristol Permaculture Group, Transition Bristol and Shift Bristol - leading its much loved Practical Sustainability Course. Most importantly, Sarah is mum to a brave and wonderful 12 year old son, whom she’s brought up single-handed. She says it’s hard to know which is more challenging - having a brain tumour or getting a 12 year old to do his homework!

As some of you will know, last year, Sarah stepped out of co-ordinating Shift Bristol and started teaching online to make space to write her long-awaited book. The sudden onset of a life-threatening grade 4 glioblastoma brain tumour wasn’t exactly in the plan. The tumour severely affected her brain’s language centre and she needed urgent surgery. Sarah chose to have a waking craniotomy neurosurgery, so she was conscious and cracking jokes during the op. Although the surgery went well and resulted in an impressive 100% removal of the original tumour the glioblastoma will always re-seed into neighbouring cells, developing into a new tumour.

Sarah has since undergone radiotherapy and several months of chemotherapy. So far she’s responded well, despite the ongoing fatigue. She’s radically adapted her diet and lifestyle with amazing help from herbalists, integrative practitioners and medical consultants, Vitamin, herbal and mushroom supplements are helping boost her immune system and combat side effects. She has slowly regained her ‘mum powers’ and is keeping the family together. She has had enormous support from friends, family and neighbours who've helped cook, walk the dog, and do shopping. They even helped move house. Doorstep visits and phone calls kept her spirits up through hair loss, fatigue and the shock and grief that comes with such a brutal re-assessment of life goals. Two amazing friends moved in temporarily to help look after the boy and the dog.

However, the difficult truth is, despite lifestyle changes, and all the treatments, the prognosis for glioblastomas is bleak. At some point the tumour will regrow and possibly spread to other parts of the brain..

The 'median survival time' is devastatingly short – just 14-16 months. Only 25% of glioblastoma patients survive more than one year; 5% of patients survive for more than five years with only a tiny handful making it much beyond that. Survival rates here are below many other countries, and progressive treatments used elsewhere are unavailable. In the UK there is nothing beyond the standard treatments of chemotherapy, surgery and radiotherapy.

The oncologists have often told Sarah that they don’t want to give her ‘false hope’. She’s had words with them about that! Whilst fully accepting that an untimely death is incredibly likely, she’s actively hoping to at least see her son through school. She's doing her best with what's in front of her.

After much research and a recommendation from several people, including a long-term survivor, Sarah is keen to try immunotherapy, a progressive treatment that has shown very promising results. Germany is the nearest country to offer this, and it is widely used in the USA and other EU countries. The treatment creates a personalised vaccine made from the patient’s own immune cells to target and kill the cancer. Sarah likens this to sending her white blood cells to ninja training school and she loves the idea of her own system being instrumental in the fight. The vaccine is then administered at regular intervals over the next couple of years. While ultimately there is no ‘cure’, the treatment has shown significant increases in survival rates.

All of Sarah’s work has been for passion and conviction, not for financial gain, so she isn’t in a position to afford this treatment. So we, her community, friends and family want to make sure she gets to Germany and has every weapon in her armoury to fight this thing off for as long as possible. Will you join us?

Treatment for three years costs a minimum of £70,000, plus basic travel and accommodation. We are looking to raise £80,000 in total. Sarah and a helper will need to travel three or four times a year to Germany for the duration of the treatment. The initial treatment takes a week but after that, each trip is a couple of days. Any funds raised will be carefully and transparently managed by an independent team. If the treatment doesn’t work, any residual money will be donated to a similar fund.

Please consider giving what you can. Thank you!

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Updates

11

  • Jax Long9 days ago
    Jax Long

    Jax Long

    9 days ago
    Update from the Page owner

    So much love. Thank you wonderful humans. 🧡💛💚

    Share this update to help us raise more

  • Jax Long10 days ago
    Jax Long

    Jax Long

    10 days ago
    Update from the Page owner

    Still more to come from the raffle and event means we'll meet the target. Honestly I don't know how to say thank you to everyone enough, or to express all these emotions. To have so many people rooting for me, loving me and supporting me and the boy. Just beautiful. I've still got an enormous fight ahead with impossible odds. There's no certainty and no guarantees. But I've got the best chance I can possibly have and I'm going to do my best. Thanks and love to all of you. You're just incredible. Sarah xx

    Share this update to help us raise more

  • Jax Long18 days ago
    Jax Long

    Jax Long

    18 days ago
    Update from the Page owner

    ❤❤❤❤

    Share this update to help us raise more

2 months ago

Jax Long started crowdfunding

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Page last updated on: 9/19/2021 20.57

Supporters

1433

  • Matt R

    Matt R

    Sep 19, 2021

    You're an inspiration Sarah, always have been!Big love. X

    £20.00

  • A. Friend

    A. Friend

    Sep 17, 2021

    Love you 💜😘

    £50.00

  • Anonymous

    Anonymous

    Sep 15, 2021

    £20.00

  • Jus

    Jus

    Sep 15, 2021

    So much love, beautiful funny woman xx

    £20.00

  • Anonymous

    Anonymous

    Sep 15, 2021

  • Looby

    Looby

    Sep 14, 2021

    wishing you all the luck in the world love Looby

    £20.00

  • Su & Paul

    Su & Paul

    Sep 14, 2021

    Thinking of you and sending love Sarah xxx

    £100.00

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About the fundraiser
Jax Long

Jax Long

Bristol

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